Primary CNS lymphoma Recovery .

Frank59 — Sun, 18 Oct 2026 04:34:31 GMT

Hello everyone,

I'm Frank, a 67-year-old electrical engineer based in Perth. I'm reaching out for information about part-time work after cancer treatment, and how to combat bad days.

Three years ago I was diagnosed with Primary CNS Lymphoma (PCNSL). My treatment involved four rounds of chemotherapy, radiation therapy and a stem cell transplant.

It was a long and demanding road, and I'm very grateful to my medical team and the people who supported me through it.

These days I have good days and bad days. On good days, following my doctors' advice, I feel strong. On bad days I feel weak and fatigued, have balance issues, get bad leg cramps and struggle with motivation. I take magnesium glycinate for the cramps, and I'm also on prescription medications, including ibrutinib and eye drops. Because of this, I'm looking for part-time work that fits around how I'm feeling.

I would really appreciate any information or experiences on:

Finding part-time, contract or consulting roles

Talking to employers about my health history and any adjustments I might need
Combating bad days: fatigue, weakness, balance issues, leg cramps and low motivation

Support services, programs or organisations that help people working after cancer

How part-time income might affect the Age Pension or other entitlements

If you've been through something similar, or know of helpful resources, I'd love to hear from you. Thank you for reading.

Kind regards,
Frank

Re: Primary CNS lymphoma Recovery .

Miranda_ccnsw — Tue, 20 Oct 2026 05:17:41 GMT

Hi @Frank59 , thanks for sharing your journey here in the online community. I hope someone in WA or who has faced a similar situation reaches out with some ideas for you also.

Going through such a huge treatment journey takes a lot of strength, and being on the other side of it brings new challenges that are tough, just different.

Here's a resource that may be of help: https://www.cancercouncil.com.au/cancer-information/coping-with-a-diagnosis/work-and-cancer/for-workers/

There's even a podcast episode on that page that may be supportive also.

The other option you have is to call our Cancer Connect team on 13 11 20 and they will be able to point you in the direction of resources available to you in WA.

Wishing you all the best,

Miranda

CCNSW

topic Re: Primary CNS lymphoma Recovery . in Living with and beyond cancer

Primary CNS lymphoma Recovery .

Re: Primary CNS lymphoma Recovery .