topic Brain cancer in Coping with a loved one's cancer

Brain cancer

Annie — Wed, 11 Mar 2009 01:02:37 GMT

Hmmm, not many questions or answers here yet! My partner was diagnosed with GBM, had an operation to remove it, and is now in his 2nd week of radiation and chemotherapy treatment - he's tired and as he had a seizure at the weekend, is now scared to go walking anywhere.... I think I just need to 'talk' to someone who's been through this or is going through this

Brain cancer

mikey — Wed, 11 Mar 2009 01:03:37 GMT

Hi Annie, welcome to the forum and thanks for being the first to post in the brain cancers' forum. I help to moderate the forums on this website.I can't say I have personal experience with GBM or other Brain tumours but I'm always happy to listen. Hopefully more people will start posting here now that you've taken the first step.Best wishes, mikey

Brain cancer

Annie — Wed, 11 Mar 2009 01:04:37 GMT

so, is a brain tumour so very rare?

Brain cancer

mikey — Wed, 11 Mar 2009 01:05:37 GMT

I don't think it's that your partner's condition is so very rare. This is a relatively new service offered by the cancer council and it takes a while for people to start using it. You might notice on the top right of this page there is a link that says "subscribe to this post". If you click on this then you will get an email every time someone responds to this post. You can subsribe to the whole forum too if you like.BTW, I like your puppy.

Brain cancer

slipslop — Wed, 11 Mar 2009 01:07:37 GMT

hi there i had a secondary tumor removed on 20th October the cancer came from outer space...oops my bladder, well if you dont laugh you will cry. i know that strictly speaking its not brain cancer but it is a cancer and it does effect the brain, it was in the left occipital lobe and was successfully removed. now the fun begins. 9 blasts of radiation to make my complexion glowing and more chemo (taxol and carboplatinum). i dont know why im getting chemo as i understood that chemo couldnt get to the brain.

Brain cancer

Sooziii — Wed, 11 Mar 2009 01:08:37 GMT

Hi Annie My husband also has a brain tumour but his is an inoperable infiltrating oligodendroglioma.We have been battling this since 1994 - he had radiation then and had chemo (PCV) in 2005-2006. At the moment it is not active but his is severely handicapped by the tumour effects. The whole left hemisphere of his brain is touched by it.The radiation and the chemo left him debilitated and I guess it took him a good 6 to 8 months to recover.Regards Sooziii

Brain cancer

mikey — Wed, 11 Mar 2009 01:09:37 GMT

Hi Sooziii, I found your web page, or blog yesterday.... did put a thingy in the guest book. Horrible things these brain tumours aren't they. Steve is in early days of treatment at the moment, and he's going pretty ok, hate to think what he'll be like by Christmas though....

Brain cancer

mumoftwo — Wed, 11 Mar 2009 01:10:37 GMT

Hello, I am the mum of a five year son diagnosed with a brain stem glioma grade 2 in May 2008. Currently I have the decision to make radiation or surgery. Four expert doctors are saying do not operate as it is too risky being fully encased within the brain stem and grade two. They believe radiation is the only acceptable treatment. On the other hand - Dr Teo is confident he can remove the tumour even saying "cure" it. There are of course risks involved with he told me of. Weighing this up with the tumour's progression which will, if left untreated or even with radiaion will likely kill him in maybe 12 months. Can anyone share their experiences of a similar situation with this type of children and especially in children? thank you mumoftwo

Brain cancer

shazpb — Wed, 11 Mar 2009 01:12:37 GMT

Hi, So sorry your son isn't well. My thoughts and prays are with you. My husband was diagnosed with astrocytoma II in the spine (T2 - T6) way back in 1972 when he was 11 years old. He underwent a laminectomy, Radiation and chemotheraphy. In 1978 he was diagnosed with a tumour in the cerebellum and brain stem. Classed inoperable. Radiation was once again given. Between 1978 - 1995 he married, had 3 children and fufilled an "ordinary" life. Around 1995 the disease seeded in other parts of his spine and brain. To be honest the disease has caught up with him a bit now but he still lives and enjoys life. At the time of his diagnosis the outlook was grim. 36 years on I guess he proved the doctor's wrong! Remember to always live in hope Shazpb

Brain cancer

Annie — Wed, 11 Mar 2009 01:13:37 GMT

Hi all.... long time no post.... I am now living with my daughter and her family, my partner, with the brain tumour decided that he didn't want to 'be a burden', so kicked me out... This happened back in January... I am feeling guilty about leaving him, I still worry about him all the time, still love him to bits... He's now on to month 3 of 6 chemo treatments...

Brain cancer

admin_one — Wed, 11 Mar 2009 01:14:37 GMT

Hello everyone, I have come across the Australian brain tumour [tumor] online support group and thought it would be interesting for you to also have a look. This is the link to access it (you need to request a membership) http://health.groups.yahoo.com/group/OzBrainTumour/ Hope this helps, Raul

Brain cancer

denis — Wed, 11 Mar 2009 01:15:37 GMT

Hi. The advice by Raul is good. The OZ brain tumour list has been going for eight years.The most comprehensive web-based source of advice in the English language for brain tumour patients and caregivers is Al Musella's www.virtualtrials.com It is US-based but is very relevant. The website for the brain tumour group I Chair (the International Brain Tumour Alliance) has links to dozens of brain tumour support groups around the world. Go to www.theibta.org and click on "website links".Good luck!Denis StrangmanCanberra

Re: Brain cancer

Vetticus — Thu, 18 Jun 2009 07:05:45 GMT

Hi, Is there anyone here who's had an Anaplastic Astrocytoma Grade 3 brain tumour? I just got diagnosed 3 months ago, can really do with some chatting with a fellow "diagnosee". Look forward to hearing from someone. :) Yvette

Re: Brain cancer

admin_one — Thu, 18 Jun 2009 13:51:23 GMT

Hi Yvette, If you follow this link you will find all the people in the community that have been diagnosed with brain tumours or that have had a loved one having one. The yahoo group mentioned before is good too. Feel free to send any other question. Best, Raul (aka Totocol)