topic Glioblastoma Malform GBM - anyone with experience, friends of? in Diagnosis and treatment

Glioblastoma Malform GBM - anyone with experience, friends of?

AG1972 — Fri, 02 Aug 2019 04:40:32 GMT

Hello,
just wondering if there are any active users here with experience in GBM? My Mom (69) has grade 4 and she's just finished her last radiation treatment, wondering what to expect now. I'm here in Australia and she's in the US....I just got back from spending 2 months with her.
Many thanks, A

Re: Glioblastoma Malform GBM - anyone with experience, friends of?

Katekat — Fri, 09 Aug 2019 00:29:22 GMT

Welcome to the community @AG1972

There are a few people here who have had experience with GBM, or have had family members with such. Hopefully one will see this and respond

How is your mum doing?

Cheers,

Kate

Re: Glioblastoma Malform GBM - anyone with experience, friends of?

AG1972 — Mon, 12 Aug 2019 02:36:54 GMT

Hi Kate,

She's okay so far, she was recently tested for the genetic Mgmt gene and she has it which I understand is a good thing, but it's all very scary and very difficult when she's in US and I'm in Australia ;-(

thanks for asking, Amy