topic Re: Question about lymphoma symptoms in Diagnosis and treatment

Question about lymphoma symptoms

Lauren77 — Sat, 20 Oct 2018 08:50:08 GMT

Upper thighLeft shoulderLeft shoulder a couple days laterChest just below neckHi all,

Just wanting to see if anyone else has had something like this happen and if I need to be worried... for the past 2 months I’ve had very itchy skin, mainly on legs, arms, chest and sometimes my back / stomach. Sometimes it’s just really itchy and red but goes back to normal and other times I get something like the photo attached. It’s like a rash however it’s under my skin. Funnily enough, once I have that rash it doesn’t cause any itching and eventually goes away - however the itch in that area can return a couple weeks later. The original itching first started from when I got very sunburnt on a cruise, I ended up getting an extreme itch on my legs and back where the burn was and the doctor said it was an allergic reaction, prescribed a cream and anti hystemene and sent me on my way. The cream did dull the itch and the areas of my sunburn improved however 2 months later I still get itchy but it’s all over now, not just limited to where I was sunburnt.

I have been back to the doctor and had a blood test, all blood count is fine and I have excellent health - in regard to the spots and rashes I’ve been getting, the doctor just said I should moisturize after a shower with sorbelene....

also so for the past few weeks I’ve been exhausted. Not so much a need to sleep, just no energy even just after 2 hours of being awake.

I know itching and fatigue can be a symptom of lymphoma - I have checked my lymph nodes in my neck, armpits and they don’t appear to have any enlarged lumps - however that being said I generally am a little lumpy apparently so I find it hard to tell as I do feel lumps but I am not sure if that’s normal or not.

I feel like the doctors don’t seem to care all too much, I’m 29 so still young and blood count was fine - I just don’t think putting some sorbelene on my skin is going to solve the itch/rash - however I have attempted it and it hasn’t done too much.

Has anyone experienced this before - and had a rash that looks like mine? Should I be pushing my doctors to test further ?

Re: Question about lymphoma symptoms

little_stitcher — Sat, 20 Oct 2018 09:08:45 GMT

Hi Lauren, I'll say straight up that I'm not a Doctor, however my husband was diagnosed with non-Hodgkin's Lymphoma so I'm pretty confident when I say if your blood tests were fine then you don't need to worry about lymphoma. If it was lymphoma your white cell count would not have been normal. Maybe you could ask for a referral to a Dermatologist (skin specialist) about your rash?

Did you mention your fatigue to your Doctor? That may be something they can help you with- vitamin or mineral deficiencies can be common causes and are simple to treat. I wish you improved health! love Emily

Re: Question about lymphoma symptoms

JackRay — Sat, 20 Oct 2018 10:30:25 GMT

I have listed some of the lymphoma symptions:

Painless swelling in a lymph node
Recurrent fevers and excessive sweating at night
Persistent itch all over the body
Loss of appetite
Coughing
Tiredness
General fatigue
Headache
Weight loss

Itching happens over the body as I am able to see in the image shared by you.But before reaching any conclusion,better to consult experts.

Re: Question about lymphoma symptoms

Taylorreeves — Mon, 27 Apr 2020 18:05:24 GMT

I have the same exact thing it didn’t come after a sunburn it started after I got my wisdom teeth taken out. Have the itching in the same spots, the same rash will appear then disappear and then become itchy again I don’t know what it is I was wondering if yours has gotten any better now I’m staring to worry if it’s something more

Re: Question about lymphoma symptoms

Raymondwu11 — Mon, 12 Oct 2020 06:20:34 GMT

I am having similar symptoms a couple of months after the beach as well. Was wondering if you ever figured out what the cause might be?

Re: Question about lymphoma symptoms

KaceJax — Thu, 26 Nov 2020 05:04:25 GMT

Maybe you could ask for a referral to a Dermatologist about your rash, but get well soon!

Re: Question about lymphoma symptoms

Esther123 — Tue, 23 Feb 2021 20:28:26 GMT

Hi did you ever get to the bottom of this rash as I have the same one

Re: Question about lymphoma symptoms

Esther123 — Tue, 23 Feb 2021 20:29:04 GMT

Did you ever get to the root of the problem

Re: Question about lymphoma symptoms

alucca — Mon, 07 Jun 2021 07:04:52 GMT

I find it more like having a seasonal allergy, do you have any swelling? If it is swollen and feels like there are lumps inside, then it is scary. If not, I'm guessing it's just a seasonal allergy or an inflammation of the pores.

venge io

Re: Question about lymphoma symptoms

KaceJax — Sat, 04 Sep 2021 01:06:01 GMT

Good to bump on this thread. I have been experiencing itchiness from 'like rashes' - at the back, arms, legs - but no lumps. Quite worried here too. Thanks for the insightful comments.

Re: Question about lymphoma symptoms

Lfrech25 — Thu, 11 Nov 2021 14:11:21 GMT

Please don’t spread Misinformation. I was diagnosed with stage 4 follicular lymphoma after a year of doctors telling me I was fine because my blood counts were perfect. You know your body. I had a 6x6 inch mass in my abdomen, swollen inguinal, cervical, axillary, mesenteric, etc and in my bone marrow. By white blood cells counts were perfect. My LDH perfect. Please don’t tell people their counts will reflect their health

Re: Question about lymphoma symptoms

isabellakayden — Thu, 03 Feb 2022 06:14:53 GMT

Hello, I want to let you know that itchy skin is one of the symptoms of lymphoma. I suggest You should consult a doctor for exact information about your cause.

Re: Question about lymphoma symptoms

Danielletheresa — Mon, 08 Aug 2022 06:08:47 GMT

How did you find out you had lymphoma despite your clear blood tests? Thank you for sharing

Re: Question about lymphoma symptoms

Danielletheresa — Mon, 08 Aug 2022 06:10:33 GMT

How did they find it despite your clear blood tests? I am having some skin issues and I fear the same thing may be happening… that they think I’m fine but I’m not.

Re: Question about lymphoma symptoms

Kayo36 — Sun, 28 Aug 2022 11:34:34 GMT

My Lichen condition seemed to have started in 2017. I now have Lichen on my scalp, face, back, vulva, chest, and in my mouth. The parches of itchy skin can be fine and then all of a sudden cause intense itching. At the same time Lichen began, I experienced intense feelings of active “nerves” (tingling) under my left shoulder blade. My dermatologist had a name for the shoulder blade issue and prescribed Gabapentin for sleep because at that time it was keeping me awake. This all seemed to start with a flu vaccination.

The condition I’m keeping under control with various meds. Lately, I accidentally applied retin A to my vulva, thinking the tube contained clobetasol, and IT HELPED! Looked this up online and yes, retinoids ARE prescribed for this condition! So, I will consult my dermatologist about obtaining an rx. As a matter of fact, retinal A applied in rather large amounts has helped patches of it on my back and other places. In the pictures used for the article, I notice areas of rash look a bit purplish and wonder if hers could be same as mine for purplish spots is a term used to help classify lichen.

Re: Question about lymphoma symptoms

Csforrester99 — Thu, 23 Mar 2023 00:51:54 GMT

I am sorry you went through all this. How did they find the mass in your abdomen?

Re: Question about lymphoma symptoms

Esstee — Sun, 05 Nov 2023 03:48:26 GMT

So true about the normal labs with cancer diagnosis. The story of my life. Just about every ailment I’ve had has begun and progressed in a non traditional way- e.g. had completely normal labs with gallstones that were so prolific my gallbladder almost burst. Symptoms I had prior to that were brushed off as GERD/reflux and IBS/IBD.

Listen to your body and press your Dr to do tests even if your labs are “fine.” Keep complaining about whatever it is that’s the issue. Someone is bound to get to it hopefully sooner than later. Educate yourself too. Drs loathe the self educated patient, but if you know how to talk to your dr w/o offending his fragile ego (rolling eyes), he might just listen and learn something new!

Re: Question about lymphoma symptoms

Twina1977 — Fri, 24 Nov 2023 11:54:11 GMT

This could not be further from the truth!! My husband has always had normal labs and he was diagnosed with follicular non Hodgkin’s lymphoma with cutaneous involvement not everyone has text book symptoms so to say you are confident that they don’t need to worry about Lymphoma is very ill advised

Re: Question about lymphoma symptoms

Dare — Tue, 16 Jul 2024 06:24:22 GMT

Hi Dear,

I've been facing exactly same symptoms from last week... Could you please advise how you solved this. is it something serious?

Doctor wasn't able to diagnose what is exactly issue.

Re: Question about lymphoma symptoms

vicky88 — Mon, 02 Sep 2024 13:18:40 GMT

You are so wrong and you are spreading misinformation. I’ve only registered to reply to your post to spread awareness.
I was diagnosed with follicular lymphoma stage 4b in 2021 my blood tests were perfectly fine.
also my aunt passed away from leukaemia. She had regular blood tests. Her blood counts were all good until it was too late.