https://onlinecommunity.cancercouncil.com.au/t5/Diagnosis-and-treatment/Ewing-sarcoma/m-p/4567#M296 Hi Tanya There is a great website for rare tumours: https://www.cart-wheel.org/ It is the home of the centre for the analysis of rare tumours . Cheers Sailor Never go into strange places on a falling tide without a pilot. Thomas Gibson Bowles Fri, 02 Jul 2010 10:18:54 GMT Sailor 2010-07-02T10:18:54Z https://onlinecommunity.cancercouncil.com.au/t5/Diagnosis-and-treatment/Ewing-sarcoma/m-p/4564#M293 Hi, my husband was recently diagnosed with cancer, he has a Primitive neuroectodermal tumor which is part of the Ewing Sarcoma family. I was wondering if there is anyone who is going through or has gone through this type of cancer who would be able to offer some information to us. Thanks Tanya Wed, 30 Jun 2010 23:41:26 GMT https://onlinecommunity.cancercouncil.com.au/t5/Diagnosis-and-treatment/Ewing-sarcoma/m-p/4564#M293 2010-06-30T23:41:26Z https://onlinecommunity.cancercouncil.com.au/t5/Diagnosis-and-treatment/Ewing-sarcoma/m-p/4565#M294 Hi Tanya Welcome to the forums, unfortunately I don't have any information regarding Ewing's Sarcoma, hopefully someone will jump in on that one. Julie Thu, 01 Jul 2010 00:13:27 GMT https://onlinecommunity.cancercouncil.com.au/t5/Diagnosis-and-treatment/Ewing-sarcoma/m-p/4565#M294 Jules2 2010-07-01T00:13:27Z https://onlinecommunity.cancercouncil.com.au/t5/Diagnosis-and-treatment/Ewing-sarcoma/m-p/4566#M295 I've sent you a PM Jill Thu, 01 Jul 2010 01:12:23 GMT https://onlinecommunity.cancercouncil.com.au/t5/Diagnosis-and-treatment/Ewing-sarcoma/m-p/4566#M295 wapwap48 2010-07-01T01:12:23Z https://onlinecommunity.cancercouncil.com.au/t5/Diagnosis-and-treatment/Ewing-sarcoma/m-p/4567#M296 Hi Tanya There is a great website for rare tumours: https://www.cart-wheel.org/ It is the home of the centre for the analysis of rare tumours . Cheers Sailor Never go into strange places on a falling tide without a pilot. Thomas Gibson Bowles Fri, 02 Jul 2010 10:18:54 GMT https://onlinecommunity.cancercouncil.com.au/t5/Diagnosis-and-treatment/Ewing-sarcoma/m-p/4567#M296 Sailor 2010-07-02T10:18:54Z