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    <title>topic mri results...not what we were hoping in Diagnosis and treatment</title>
    <link>https://onlinecommunity.cancercouncil.com.au/t5/Diagnosis-and-treatment/mri-results-not-what-we-were-hoping/m-p/10275#M530</link>
    <description>my dad got his mri results back today.

there is a tiny pin prick size mark near to where his brain tumour was removed.

he had his first surgery 2 july 2012.
dx a few days later with gbm...had radiation and chemo

the doctors not sure if it's scarring or a recurrence...or what.

they are going to get back to him and my mum on thursday.


i haven't seen him for a few weeks, I miss him. I will visit this week...something to look forward to at least.

by then we will perhaps have news of what will happen next...
more surgery...different treatment??

i wasn't expecting this so soon...(and anyway it might not be that bad...mybe?)

i feel upset...i want it not to be...any of it...i want it to be a nightmare and i'll wake up soon.
but when i struggle with it ..it's so much worse.

when i can let myself feel how sad I am that my beautiful wonderful dad has this illness..it helps somehow...it helps me focus on the love i have for him...i love him...that's why this hurts so much...

x</description>
    <pubDate>Tue, 04 Dec 2012 11:58:38 GMT</pubDate>
    <dc:creator>tatsoi</dc:creator>
    <dc:date>2012-12-04T11:58:38Z</dc:date>
    <item>
      <title>mri results...not what we were hoping</title>
      <link>https://onlinecommunity.cancercouncil.com.au/t5/Diagnosis-and-treatment/mri-results-not-what-we-were-hoping/m-p/10275#M530</link>
      <description>my dad got his mri results back today.

there is a tiny pin prick size mark near to where his brain tumour was removed.

he had his first surgery 2 july 2012.
dx a few days later with gbm...had radiation and chemo

the doctors not sure if it's scarring or a recurrence...or what.

they are going to get back to him and my mum on thursday.


i haven't seen him for a few weeks, I miss him. I will visit this week...something to look forward to at least.

by then we will perhaps have news of what will happen next...
more surgery...different treatment??

i wasn't expecting this so soon...(and anyway it might not be that bad...mybe?)

i feel upset...i want it not to be...any of it...i want it to be a nightmare and i'll wake up soon.
but when i struggle with it ..it's so much worse.

when i can let myself feel how sad I am that my beautiful wonderful dad has this illness..it helps somehow...it helps me focus on the love i have for him...i love him...that's why this hurts so much...

x</description>
      <pubDate>Tue, 04 Dec 2012 11:58:38 GMT</pubDate>
      <guid>https://onlinecommunity.cancercouncil.com.au/t5/Diagnosis-and-treatment/mri-results-not-what-we-were-hoping/m-p/10275#M530</guid>
      <dc:creator>tatsoi</dc:creator>
      <dc:date>2012-12-04T11:58:38Z</dc:date>
    </item>
    <item>
      <title>Re: mri results...not what we were hoping</title>
      <link>https://onlinecommunity.cancercouncil.com.au/t5/Diagnosis-and-treatment/mri-results-not-what-we-were-hoping/m-p/10276#M531</link>
      <description>I'm so sorry to be reading this Tatsoi, I really do hope that it isn't the worst...

Does he have any more rounds of treatment to complete?

How is your Dad doing in general?

Hang in there, keep yourself focused on your visit and being able to spend precious time with him.

Much love

Dx</description>
      <pubDate>Wed, 05 Dec 2012 02:02:19 GMT</pubDate>
      <guid>https://onlinecommunity.cancercouncil.com.au/t5/Diagnosis-and-treatment/mri-results-not-what-we-were-hoping/m-p/10276#M531</guid>
      <dc:creator>Supporting_Mum_</dc:creator>
      <dc:date>2012-12-05T02:02:19Z</dc:date>
    </item>
    <item>
      <title>Re: mri results...not what we were hoping</title>
      <link>https://onlinecommunity.cancercouncil.com.au/t5/Diagnosis-and-treatment/mri-results-not-what-we-were-hoping/m-p/10277#M532</link>
      <description>hi D,

i'm not sure how many more rounds he has...more, not sure if they will continue with it...if it's not working.
i guess i'll know more soon 

now i'm just looking forward to seeing him
and see how he's going..it's hard to tell from telephone conversations

thankyou for your message

it helps to be heard

hope your mum is going alright

x</description>
      <pubDate>Wed, 05 Dec 2012 23:45:51 GMT</pubDate>
      <guid>https://onlinecommunity.cancercouncil.com.au/t5/Diagnosis-and-treatment/mri-results-not-what-we-were-hoping/m-p/10277#M532</guid>
      <dc:creator>tatsoi</dc:creator>
      <dc:date>2012-12-05T23:45:51Z</dc:date>
    </item>
    <item>
      <title>Re: mri results...not what we were hoping</title>
      <link>https://onlinecommunity.cancercouncil.com.au/t5/Diagnosis-and-treatment/mri-results-not-what-we-were-hoping/m-p/10278#M533</link>
      <description>Hope it turns out to be nothing . Wishing you well .</description>
      <pubDate>Fri, 07 Dec 2012 00:09:20 GMT</pubDate>
      <guid>https://onlinecommunity.cancercouncil.com.au/t5/Diagnosis-and-treatment/mri-results-not-what-we-were-hoping/m-p/10278#M533</guid>
      <dc:creator>SILLY</dc:creator>
      <dc:date>2012-12-07T00:09:20Z</dc:date>
    </item>
    <item>
      <title>Re: mri results...not what we were hoping</title>
      <link>https://onlinecommunity.cancercouncil.com.au/t5/Diagnosis-and-treatment/mri-results-not-what-we-were-hoping/m-p/10279#M534</link>
      <description>Well must be the week for bad MRIs, I was sorry to read the news of your fathers results earlier in the week Tatsoi. My hubby had MRI yesterday news today not good a new tumour close to original site. Second craniotomy coming up before christmas if we can. Damn GBMs. He had just finished his 11th round of chemo, he had his driving test book for next week now to be cancelled. I just feel so terrible for him.</description>
      <pubDate>Fri, 07 Dec 2012 04:32:44 GMT</pubDate>
      <guid>https://onlinecommunity.cancercouncil.com.au/t5/Diagnosis-and-treatment/mri-results-not-what-we-were-hoping/m-p/10279#M534</guid>
      <dc:creator>Minx</dc:creator>
      <dc:date>2012-12-07T04:32:44Z</dc:date>
    </item>
    <item>
      <title>Re: mri results...not what we were hoping</title>
      <link>https://onlinecommunity.cancercouncil.com.au/t5/Diagnosis-and-treatment/mri-results-not-what-we-were-hoping/m-p/10280#M535</link>
      <description>Doctors aren't sure what the patch on MRI is.

Saying maybe a blood clot?

anyway...no action for now!

His next MRI has been brought forward a few weeks...so maybe we will know more then.

but for now, i can breathe.

and I got to see him doing so well last weekend
enjoying have himself with his family and his friends
..dive bombing in his friend's pool!

I feel blessed to have this time with him...
I think he not only inspires me, but his friends too

..that he can carry on - still laugh, still enjoy

people are amazing
my dad is amazing

minx - hope your husband is recovering from his 2nd cranio - what a shock.
take care

x</description>
      <pubDate>Thu, 13 Dec 2012 06:11:21 GMT</pubDate>
      <guid>https://onlinecommunity.cancercouncil.com.au/t5/Diagnosis-and-treatment/mri-results-not-what-we-were-hoping/m-p/10280#M535</guid>
      <dc:creator>tatsoi</dc:creator>
      <dc:date>2012-12-13T06:11:21Z</dc:date>
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