topic Re: Terminal lung in Facing end of life

Terminal lung

LeeRoy — Mon, 26 Aug 2019 12:04:59 GMT

I was given 6 months to live 9 months ago and I have been given chemotherapy then immunotherapy ongoing and now radiation therapy for small cell lung cancer,

Two new tumors have metastasized to my chest wall they also have had radiation therapy 5 sessions each I'm in so much pain now especially at night on Fentanyl, OxyNom, Endone and others,

Now a nurse from pelitve care I see every 2 weeks wants to give me a butterfly to administer Morphine on a regularly and I'm just sick of it ,

I wish I would just have a massive heart attack and die, I'm sorry if it offends but I'm just so tired of living

Re: Terminal lung

RJG — Mon, 26 Aug 2019 12:18:51 GMT

Hi LeeRoy,

I am so sorry to hear of your suffering. I have no idea how I would manage to cope in a similar situation.

Perhaps it is time to have a discussion with your family about moving to Victoria.

My thoughts are with you.

Rick

Re: Terminal lung

sch — Tue, 27 Aug 2019 11:41:55 GMT

Hi LeeRoy,

This is tough. While I haven't been exactly where you are before, I've been very ill and thought that the end of my life as I knew it was here.

Do you have family nearby?

Where are you based?

-sch

Re: Terminal lung

LeeRoy — Tue, 27 Aug 2019 11:53:23 GMT

@sch wrote:
Hi LeeRoy,
This is tough. While I haven't been exactly where you are before, I've been very ill and thought that the end of my life as I knew it was here.
Do you have family nearby?
Where are you based?

-sch

Hi sch,

I have been admitted to hospital today and under new pain management with a butterfly cannula to administer Morphine when required mixed with other medications I'm kind of happy with my situation at the moment, family with me

I'm in Melbourne

Thanks sch

Re: Terminal lung

LeeRoy — Tue, 27 Aug 2019 11:56:06 GMT

Thanks Rick
I'm in hospital with help
Cheers for understanding

Re: Terminal lung

tina80 — Wed, 28 Aug 2019 04:44:38 GMT

I do hope you recover against all odds, my thoughts and prayers are with you..
I found focusing on my breath from time to time helped me while going through my journey..

Re: Terminal lung

LeeRoy — Wed, 28 Aug 2019 05:29:36 GMT

@tina80 wrote:
I do hope you recover against all odds, my thoughts and prayers are with you..
I found focusing on my breath from time to time helped me while going through my journey..

Hi Tina, thanks for your kind words I'm in hospital as I write this I have seen my oncologist and Palliative care people, I'm in a different state of mind just now having spoken to them,

Sure I will feel better with new pain management.

Cheers LeeRoy

Re: Terminal lung

Ngahuia — Thu, 29 Aug 2019 03:57:43 GMT

Greetings Lee Roy

I understand the emotions that you are feeling, for like you I too suffered in simlar when they diagnosed my survival rate, but I am still here. It is so Overwhelming Holistically that our Coping Mechanisms are not what we hoped for.

Such Courage to Share to let us Read your Voice hence helping others to Express the Emotions we too often keep to ourselves.

Thank You and Heal with Light

Re: Terminal lung

CaptainAustrali — Wed, 11 Sep 2019 10:47:05 GMT

Mate, I think your fight now is as much psychological as it is physical.

I hope that your prognosis improves, I hope that instead of words like 'palliative', words like 'remission' start to creep into doctorly discussion.

BUT, if they don't, I'd gently suggest that you put your hand firmly on the wheel and decide where and how you want the ship to beach itself.

We, none of us, know what comes next, but if you're facing the end of your life - it's not over yet. You still have time. I think if you are resolute in warding off the fatigue, the suffering, the grief, you could make sure that whatever time remains to you (whether it's days, weeks, months or years) has at least some touch of joy and dignity.

It's lovely that you have family with you, and that the medical people are helping manage your pain.

As a fellow cancer sufferer, I know how all of this stuff feels. I'd just urge you to consider that we (all of us) have a dwindling amount of sand in the hourglass. However much time remains to you, I hope that despair doesn't colour it too much. I hope that you can find the mental strength to push through that, and embrace whatever time remains, and take whatever love and happiness you can squeeze out of it.

Enjoy your family, hold their hands, smile at them. Let them read to you if it pleases them. Tell them whatever it is you might need to tell them. Try and be happy from one moment to the next.

And probably stop posting here 🙂

Re: Terminal lung

yvonne3333 — Wed, 25 Sep 2019 02:45:46 GMT

I have the same issues diagnose given 6 months now in my 10th month

Mentally hard to deal with

trying my best to keep others positive

I know that i am unable to change anything , if only i had the date of when i would go then i could plan

prayers for you

Re: Terminal lung

David50 — Thu, 26 Sep 2019 14:18:50 GMT

Hi Lee Roy.

I totaly understand your comments and in no way offends me at least.

I feel the same with my Pancreatic Neuroendocrine Tumor.

I am sick of it all and im only at the begining of the end and have alot of suffering to do and have already.

I am now getting palitive care and my life is much better now that my pain and symptoms are being properly dealt with so i can be more functional more days instead of being bedridden basicly from pain and Lanreotide side effects and depression and anxiety.

I hope things in your life can be the best they can under the circumstanes.

All the best Lee Roy.

Re: Terminal lung

Ngahuia — Fri, 27 Sep 2019 01:21:41 GMT

Hi LeeRoy

I thought I would write to you asking of your wellbeing and that today you are graced with love.

It is Heartbreaking to read replies and the Deep Impact upon Mental Health especially the Heart. I can only imagine how you feel as at times one's despair can vary greatly.

I was diagnosed with Terminal Cancer with little hope of Recovery once they removed my Lung and I am still here 4 years later but I had to fight though I did not know I was doing so for it felt the opposite. If I was going to "kick the bucket" then it would be on my terms, it was not the Cancer that scared me, it was Life itself. I had to overcome many personal journeys to reach a point of, not acceptance but rather understanding beyond myself.

I still question my Life but it is not with discontent but rather with

Who Am I, Why Am I Here, questioning my Self Worth and Values and whether I could contribue to Life without Regret. I continue to Fight even in my darkest days, the Loneliness of Loss. In saying this I gained a New Life that I dreamt of as a child. There is no wrong path of healing for at the end of a moment we make our own decisions. I needed help in all aspects of my life and had to learn to walk again holistically. Four years of shedding layers.

For me, I walk towards making moments count even in severe pain. I make my life matter. Its my responsibility to grow my family though I am separated from them and I have no children. I have received very little support over 4 years by choice.

We have so much to offer should it be a short or long time.

May you be well

Kind Regards

Ngahuia

Re: Terminal lung

Ngahuia — Wed, 02 Oct 2019 05:26:09 GMT

Hi Lee Roy Thank you for your reply. I am glad to read that your pain and suffering is being dealt with to give you some form of quality of life. It seems to be so ongoing with so many sufferring with pain, ongoing and neverending illnesses. Popping in to express my gratitude and gentle journeys to you. Ngahuia

Re: Terminal lung

Susanne — Wed, 26 Aug 2020 03:08:33 GMT

I was cancer free 2018 after going through really gruelling treatment . My lung cancer has returned. It’s given me an opportunity to put everything in order. Many people don’t have that time to plan. I can’t do much because of the breathlessness, I was always active it’s quite depressing and boring virtually doing nothing all day every day. It’s good to have a forum like this where your not alone or judged. Thank you