topic Re: Online Chat. in New? Start here!

Online Chat.

Malcolml — Tue, 03 Apr 2012 07:29:24 GMT

I wish this site had the capability of actually chatting with the other people who are on line at the same time.

Re: Online Chat.

Mignon — Tue, 03 Apr 2012 07:40:36 GMT

I agree, but it is a good site. You can send private messages, and people can choose to give you their private email or phone number, I guess. Good Luck.Mignon

Re: Online Chat.

Rarelyseen — Wed, 04 Apr 2012 07:58:46 GMT

Hi I have been diagnosed with a rear cancer or cancers, I am told I am not going to survive, apparently no one has ever survived this cancer,I need some support, I feel terrible and alone, if anyone would like to chat I am on Facebook and we could sort out something so we could video chat there via the chat, does the cancer Council have a facebook page? Maggie

Re: Online Chat.

lizzie1040 — Wed, 04 Apr 2012 19:31:07 GMT

I agree some times when I get down a chat with someone directly would be wonderful. I am sending a lot of hugs your way ((((-)))).

Re: Online Chat.

Seadee — Wed, 04 Apr 2012 20:05:56 GMT

Hi Maggie, I am in the same position as you and there is not really support on this website for people with a terminal diagnosis.I think it's shocking and myself and others have tried to get something done, but just get fobbed off.If you want to private message me, we can arrange to chat as we really need to support each other. Take care, Dee x

Re: Online Chat.

Seadee — Wed, 04 Apr 2012 21:03:43 GMT

Sorry, that goes for anyone in the same situation. Best wishes, Dee

Re: Online Chat.

Kate_Unicorn — Thu, 05 Apr 2012 04:40:00 GMT

Hi All, We just wanted to hop in at this point to acknowledge this conversation. Thanks to everyone for sharing your ideas. We very much welcome constructive feedback about how we may be able to improve things at Cancer Connections, and are glad you’ve felt comfortable to talk about that here. The idea of having an online chat facility available 24 hours per day is one that has come up from time to time, and this is a good opportunity for the team to revisit this. Alongside the benefits, some potential issues to consider include how we manage “spam” and other unhelpful interactions and visitors, as well as how to appropriately care for those vulnerable people who have specific support needs. On this basis it’s something we can’t provide an immediate answer to. However we acknowledge your interest and will come back to the community with our thoughts within the next few weeks. If you would like to contribute to this process please contact us at admin@cancerconnections.com.au. It’s also worth mentioning that live chat is a tool that is used in our online groups (see the “Groups” tab above for a list of the current groups available). Some groups use this regularly (e.g. our Advanced Cancer group), others are in the process of starting this up (e.g. our Gynaecological Cancer group). Our online groups are dynamic –we are always in the process of looking at areas of need - and where possible developing new groups in response. New groups to watch out for in coming months include: Malignant brain tumours Younger adult ‘survivors’ Younger adult bereavement In relation to the provision of support via Facebook and other similar sites, these can be a valuable tool in connecting with others. It’s also worthwhile considering however that these sites are first and foremost commercial enterprises. Any content and information you provide can be and is used for market research and targeted advertising. Considering the potential impact on your privacy is crucial when considering using these types of media service. It remains a matter of personal choice as to whether they should be used or not but being aware of the risks should always play a part in your decision. Thanks again for this conversation - let’s keep talking and sharing ideas! Warm Regards, Kate and Felix Cancer Connections Admin Team

Re: Online Chat.

Seadee — Thu, 05 Apr 2012 21:34:59 GMT

I have found messenger a useful and private way to communicate one on one with other people I have found on this and other sites. If you are like me and don't find there is specifically a group here for you (the advanced group Kate was referring to is actually called the Ongoing group), then have a look around at other sites.Hope everyone finds the support they need as you deserve it. Happy Easter Everyone!! Dee x

Re: Online Chat.

Stitch — Mon, 09 Apr 2012 12:28:11 GMT

Hi all I also use windows messenger. It is simular to skype. It is a great way to chat.

Re: Online Chat.

SILLY — Tue, 10 Apr 2012 01:54:40 GMT

I belong to a closed group( for people with my cancer) on Facebook . It's good . I also belong to an open group for Survivors of Head and Neck Cancers on Facebook but am more careful what I say there. If you google your own name somethings about you come up through Facebook and any sites where what was said is open to public viewing. I am hoping a group for people with my cancer is formed. We want a group for Australians with the same cancer as it is very rare. Closed groups are my first choice. There seems to be a special bond when you fing others like this. I feel closer to many Fb friends than I do to my friends offline ,in the "real world". I use chat on Facebook only when someone pops up to chat. It's ok but I prefer private messages there. I like messages here too. It's good that new groups are going to be here .

Re: Online Chat.

SILLY — Tue, 10 Apr 2012 01:58:35 GMT

The Rare Cancer Alliance is on and off Facebook.

Re: Online Chat.

SILLY — Tue, 10 Apr 2012 02:08:19 GMT

I want to add that at least here we have been able to mention other sites. I met a Brisbane lady on the Rare Cancer Alliance .I wanted to direct her to this site but it is not allowed ,even in a private message . If I tried it would be deleted. I tried this once for someone else and that's what happened . So much for" private "messages there. I did send her a message to say I'd like to talk through emailing but am still awaiting a reply.

Re: Online Chat.

Stitch — Tue, 10 Apr 2012 02:47:10 GMT

Hi Silly, It is great to be able to chat to other people with out having to be really careful how you describe your feelings or pain. I supose we will get there .... If you send me a private message I can send you my windows messenger or skype email then we could chat there. some days I wish I had a common cancer (if I had to have one at all) Having a rare one brings difficulties & challanges to both us & the medical profession. But still I am glad it is me & not my husband or son who have it. Gwen

Re: Online Chat.

Deb1960 — Tue, 10 Apr 2012 05:15:43 GMT

When I first joined Cancer Connections I hoped that I would be able to find like minded people in a similar situation to chat with, this has not been easy, many times you think that you have made a connection with someone and then you never receive an answer. The few people that I have had the privilege to connect to one on one have enabled me to talk about some difficult subject matters with people who do know what I am going through. Through this sharing and support of each other we all become stronger, everyone needs to talk, at all times of the day and night. We use MSN messenger, a safe, ad free and private set up that can allow up to 15 people ( I am sure someone will tell me if this is incorrect) to chat per session. Is there any way that Cancer Connections can set up a notice board allowing us to ask for like minded members to private message us, this way we could message each other first to make sure it is a good match before we progress to giving out our MSN addresses (with MSN you still have to allow someone to be your friend and can block anyone you do not wish to chat with anymore) Deb

Re: Online Chat.

Stitch — Tue, 10 Apr 2012 05:54:41 GMT

I do like that way of thinking Deb. :-) Gwen

Re: Online Chat.

SILLY — Tue, 10 Apr 2012 07:22:17 GMT

I don't use skype or that messenger thing . I think that since there are many rare cancers with so few Australians having each it is dificult for some people .That is why I use US sites as well. I have been able to connect with many there who have my cancer. There is another where I met a few with my cancer .This site has about 800,000 people and many groups for different medical conditions,including cancers. It is called Inspire Health and Wellness .US sites are used internationally . One difference that stands out is that they do talk a lot about God and praying. Australians generally tend to keep their religious /non-religious views to themselves ,not so many Americans. Still I believe use whichever and how many sites you like . I will continue to stay here as it feels good to talk to others close to home.

Re: Online Chat.

Stitch — Tue, 10 Apr 2012 08:18:40 GMT

I will stay here as well as I like this site, but do wish we could chat in real time when I am stressed. Gwen

Re: Online Chat.

Anonymous — Sun, 05 May 2019 09:41:40 GMT

I meant to say ....yes it would be good.
I accidentally pressed post and posted nothing.
Must be my chronic stress in my life like the rest of us here.
Carers and family and patients.
David....

Re: Online Chat.

James2375 — Sat, 21 Dec 2019 18:21:55 GMT

Sorry but is this an English support group as my partner is struggling with her terminal cancer and I am trying to get any support from others and if there are any chat groups that you might know of ? Sorry for the unsolicited question but it’s hard to find info ?

Re: Online Chat.

LostatSea — Sun, 01 Nov 2020 11:39:57 GMT

Dear Maggie.

i hope it’s alright that I just am average person am reaching out. But I want to listen I want to be there for you. I don’t know you but it doesn’t matter. I am 31 I have two kids and I lost my dad early this month to lung cancer and I am not going to pretend to understand what you are going through but I care! I don’t know you but I know I care and I want to hear your story and cry and laugh with you. I don’t know how to contact you other than this message and I pray it reaches you. Thinking of you Maggie.
sending all my strength and love to you. Xx