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New Study - is it worth joining?

koala — Thu, 25 Jun 2015 01:15:49 GMT

Hi, I got a letter about a Cancer Study that is being done as part of a grant. The study requires to fill out some forms and provide a saliva (DNA) sample. Is this worth the time or it's just useless hassle with virtually no benefits for the participants? Do you have any opinion or experience? All the best, Koala

Re: New Study - is it worth joining?

little_stitcher — Thu, 25 Jun 2015 07:38:43 GMT

Hi Koala, is this the 'forgotten cancers' study? My husband and I both participated (my husband has no family in Aus, so I did the study as someone who has had a similar lifestyle to him). It will not immediately benefit anyone, but will provide more information about people who developed the less well known cancers, and so may lead to some useful conclusions in the future. It's completely voluntary, so fee free to do whatever you like. Emily

Re: New Study - is it worth joining?

kj — Thu, 25 Jun 2015 10:35:20 GMT

Hi Koala Whether you participate is up to you,if it is the forgotten cancers project, like Emily and her husband ,friends and I have participated in the study, I think any contribution no matter how small will hopefully help future developments in all cancer treatments and studies Kj

Re: New Study - is it worth joining?

nello — Mon, 29 Jun 2015 03:12:34 GMT

I reckon participating in any cancer research is well worth it. The more we know about it, the better! I have done this particular one, if it's The Forgotten Cancers Project you're talking about. I didn't find it much of a hassle. You just have to send off a saliva sample and do a few online quizzes. Easy as pie 🙂

Re: New Study - is it worth joining?

SILLY — Sun, 11 Oct 2015 02:04:00 GMT

I took part in the Forgotten Cancers study too. It was a couple of years ago actually . I was disappointed that my cancer wasn't addressed but not surprised as it's a rare cancer . Still, I'm happy to have participated and agree that taking part in such projects is a good thing as it is beneficial to some at least .

Re: New Study - is it worth joining?

SILLY — Sun, 11 Oct 2015 02:04:05 GMT

Re: New Study - is it worth joining?

Jules2 — Sun, 11 Oct 2015 09:20:19 GMT

I think any participation in studies is a good thing. WOn't necessarily help us but future cancer patients may benefit. Julie

Re: New Study - is it worth joining?

koala — Tue, 20 Oct 2015 22:53:08 GMT

After a lot of research reviewing a lot of facts about these studies I reached the conclusion that these studies are not worth participating in for two reasons: 1. They are not aimed to find any new treatment that could save our lives 2. They take money from the pretty small pot to the detriment of valuable research that could result in a treatment that saves lives. In principle it seems that most of those studies are just done to further somebody's academic career because they are needed for promotions. That is the conclusion I reached based on following up results of many of these studies.