topic SECONDARY CANCER LEPTOMENINGEAL CARCINOMATOSIS in New? Start here!

SECONDARY CANCER LEPTOMENINGEAL CARCINOMATOSIS

Kylie64 — Thu, 03 Sep 2020 03:23:47 GMT

I have been diagnosed with primary lung cancer with the secondary affecting the nerve endings in the Lining of my brain and my lower back. I was wondering if there is anyone else out there who has similar or same symptoms. I am struggling with walking and dizziness ( I have also lost my hearing in my left ear and only have about 30% in my right) . Are things going to improve!!!!!

Re: SECONDARY CANCER LEPTOMENINGEAL CARCINOMATOSIS

Katekat — Mon, 07 Sep 2020 02:39:44 GMT

Good afternoon @Kylie64 and welcome to the community,

I am glad you found us!

Those symptoms don't sound very good, have you discussed them with your oncologist or treating team at all? Can I ask what treatment you are undergoing at the moment too?

-Kate

Cancer Council Online Community Manager

Re: SECONDARY CANCER LEPTOMENINGEAL CARCINOMATOSIS

Kylie64 — Mon, 07 Sep 2020 05:34:34 GMT

Hi Kate

I have discussed with my oncologist and am hoping that it will settle once I am off steroids. I am also having an appointment regarding cochlear implant next week. At the moment I am on immunotherapy after initial 4 x chemotherapy as last MRI was good