topic Re: Struggling so much in New? Start here!

Struggling so much

Lisa170 — Sat, 16 Oct 2021 23:43:04 GMT

I'm 37 years old diagnosed with bowel cancer late July. Had a resection a month ago which went well. Started oxaliplatin followed by capecitabine last Thursday. I just cannot manage my side effects. I haven't stopped feeling sick. I'm just ready to chuck the whole lot.

Re: Struggling so much

kj — Sun, 17 Oct 2021 00:08:32 GMT

Hopefully your side effects settle,have you asked for different nausea meds,also enquire if the strength of chemo can be dropped a touch .Hang in there.

Re: Struggling so much

Lisa170 — Sun, 17 Oct 2021 00:13:12 GMT

I'm going to try and track down the oncologist tomorrow about dropping dosages. Its just so hard when there is nobody who can help because it's Sunday.

Re: Struggling so much

kj — Sun, 17 Oct 2021 01:50:42 GMT

Everyone responds differently to Chemo.Being yes Sunday makes it more difficult,.fingers crossed for tomorrow

Re: Struggling so much

JohnDenning59 — Sun, 17 Oct 2021 06:34:13 GMT

Hello Lisa, yes, those side effects are bad, I know. I don't know if this goes for chemo's generally, but I find that the first four days are the worst, (especially the fourth) and after that they leave. Mine gives me a loss of taste and I hate the smell that sweats out of my pores, but again, it only seems to last about four days.

There is one positive, though. It keeps the mosquitoes away!

It sounds like you're going well, otherwise. Hang in there, friend.

Re: Struggling so much

sch — Sun, 17 Oct 2021 11:06:23 GMT

Hi Lisa170,

I'm sorry to hear about your chemo and the effects that it's having on your life.

As KJ was saying, your doctor can prescribe different medication and anti-nausea medication. And yes, they can also reduce the chemotherapy doses that you are receiving.

Yes, talking to your doctor/oncologist about the side effects and the effects that it is having on you, I think is really important.

I was diagnosed with bowel cancer when I was just a couple of years old than you. I've been down this path.

Good luck and let me know how you go please.

-sch

Re: Struggling so much

Wegotthis — Sun, 17 Oct 2021 13:36:25 GMT

Lisa

Thanks for sharing this with us.

I can't give you any advice because I haven't been through treatment nor do I know if I will need to.

I just found out that I do have cancer but not any where bad as yours. But you have helped me with getting ready for what may happen if I do have to go through treatment .

Please continue to share your experiences with us. I believe there are way more people reading to learn what others are going through than those who reply...

Thanks for helping me 🌹

Re: Struggling so much

LindaG — Mon, 18 Oct 2021 13:36:09 GMT

Hi Lisa, hope you’ve had some success with your oncologist today and some help for your symptoms. I know when I first started the chemo the effects were extremely bad so the dosage was adjusted, meds given to help with side effects , and it really made it much easier to bear. 💕 Linda G