topic Re: New to this forum and to Metastatic Prostate Cancer. in New? Start here!

New to this forum and to Metastatic Prostate Cancer.

Schem60 — Tue, 17 Dec 2024 06:19:37 GMT

Dear forum,

I was diagnosed with prostate cancer mid last year and had a robotic removal of the prostate late last year. Unfortunately this has returned in two and maybe three places in my body with my PSA numbers rising rapidly at the moment. I have been informed by my clinician to start 25 sessions of radio therapy in conjunction with hormone replacement therapy, this will begin very soon. He has also asked me to think about having another 8 radio therapy sessions on the location of where my prostate once was. He has informed me that this (extra 8 sessions) will come with life lasting side effects (urinating more often, and an increase of incontinents and tiredness). I don't mind saying that at the moment i am petrified about the whole thing.

I have planned a once in a life time trip in March next year which will be only weeks after the end of the 25 sessions or radio therapy and midway through hormone replacement therapy.

I would really appropriate it if there are people who have been where i am but have already been through this form of treatment to let me know how they were post treatment and how the side effects were and how they handled them.

Also, if there are some of you who may have had the 8 radio therapy treatments post prostate removal and how the side effects are and how you may be handling these.

I know that i am asking a lot but really dont know where else to turn to. The Dr's give me numbers and stats, which is great but i really want to be connected to some people who have "lived" experience with this terrible disease.

I hope to hear from some of you quite soon.

Re: New to this forum and to Metastatic Prostate Cancer.

Felicity_CCNSW — Tue, 17 Dec 2024 22:27:36 GMT

Hello @Schem60 ,

Thank you for reaching out to our online community. It can be very daunting to begin treatment and to have a reoccurrence.

Our community is very supportive so I do hope you have some responses from others who have experienced what you have been through.

Cancer Council has an information and support line and some additional support services that you may find helpful. You can call Cancer Council on 13 11 20 and speak to a health professional. I encourage you to give us a call.

Take care and wishing you well starting your treatment,

Felicity

Cancer Council NSW Supportive Care Team

Re: New to this forum and to Metastatic Prostate Cancer.

kj — Sun, 22 Dec 2024 06:56:37 GMT

Schem60
Sorry to read about your reoccurrence,unfortunately I can’t help you,with any suggestions,but hopefully another on the forum can be of some help ,you are not asking a lot that’s what this forum is about.Fingers crossed a reply can be informative.
kj