topic Grade 3 Astrocytoma in I've just been diagnosed

Grade 3 Astrocytoma

Nath250 — Wed, 09 Aug 2017 14:15:09 GMT

Hi, 6 months ago I was a fit healthy 31 year old carpenter, I was having the most successful year at work I've had, and generally in a state of happiness and excitement at the life I was living. Then out of nowhere, I woke on a Sunday morning in extreme pain in my legs and head. It got to Wednesday and I went to the doctors, they were baffled and sent me for every test possible..

After a month or so of tests we found the tumour in my frontal lobe. The neurosurgeon was confident he could remove the majority in surgery, but I'd have to be AWAKE... ( so they could ask me to move my hand, arm etc). To myself I thought "This should be interesting".

The surgery went well and they removed 90% of the tumour. I remember a lot of the surgery and think about it often. I also remember having a seizure on the operating table...

Fast forward 2 months and I've found out that it's a grade 3 astrocytoma. I am currently undergoing radiation and chemotherapy at ONJ centre, the staff are all fantastic and very helpful.

I am wondering if anyone out there has had leg pain associated with this type of tumour, as the docs are honestly baffled.. My legs feel so weak and like I've torn both hamstrings and calf muscles, I can only walk for 20 minutes or so before having to stop.Hopefully it's not something else causing this pain...

Anyway I know that was all a bit long winded but I'd like to hear other people's experiences.. Thanks for reading

Re: Grade 3 Astrocytoma

Susan_CCNSW — Fri, 11 Aug 2017 05:45:36 GMT

Hi Nath250

It seems like the past few months have been like a very unpredictable rollercoaster ride for you and the leg pain you’re experiencing sounds very difficult and distressing. I hope your medical team are continuing to investigate and able to discover the cause of the pain so that it can be treated and give you some relief. Does anyone else in the community have any insights from their own experiences to offer Nath250?

Nath250, you may also find talking with the health professionals on 13 11 20 of benefit, they can talk with you about your current situation and support services that may be helpful to you.

Kind Regards

Susan

Re: Grade 3 Astrocytoma

annelise_dixon — Wed, 29 Nov 2017 22:20:15 GMT

Yes I have leg pain too as well as numbness and pins and needles. Also having paralysis. Not sure of the cause yet as I am awaiting seeing my neurologist and neurosurgeon again. I will let you know what they say.

Re: Grade 3 Astrocytoma

Nath250 — Mon, 14 May 2018 00:25:22 GMT

Hi Annelise,

how did you go with the leg pain? Do you still have any pain or pins and needles? I am approaching a year since my surgery and i still have the pain in both my legs. The Doctors are still confused as to why i have this pain at all.. Hope you’re doing well

Re: Grade 3 Astrocytoma

Kathryn — Mon, 13 Aug 2018 06:45:31 GMT

Hi Nath250,

my husband was recently diagnosed with a grade 3 astrocytoma in his cerebellum. He’s had numbness in his right arm & leg but no pain. His main symptoms were dizziness, nausea, exhaustion and problems with balance.

Re: Grade 3 Astrocytoma

Smiley2 — Wed, 15 Aug 2018 07:53:39 GMT

Re: Grade 3 Astrocytoma

Smiley2 — Wed, 15 Aug 2018 07:50:03 GMT

@Smiley2 wrote:
I’m very sorry to hear that you have so much pain in your legs...I have with my cancer too, I have a rare form of non hodgkinsons lymphoma, have you thought of where you got this cancer from, I was exposed to wood dust ...ring any bells...just a thought..all the best..regards Smily2

Re: Grade 3 Astrocytoma

Smiley2 — Wed, 15 Aug 2018 07:55:13 GMT

Sorry I’m new here and making mistakes...can’t take the two reply off

Re: Grade 3 Astrocytoma

Nath250 — Wed, 15 Aug 2018 07:57:47 GMT

Hi Kathryn, sorry to hear... I have some dizziness, lots of exhaustion but nothing in my arms.. mostly the pain in my legs, which still have the drs baffled... thanks for your reply and wish you all the best

Re: Grade 3 Astrocytoma

Nath250 — Wed, 15 Aug 2018 08:05:37 GMT

Yes I worked as a carpenter for 10 years, but the drs ruled out any connection.. my dad and grandfather both had brain tumours so the doctors are looking into that now.... what kind of leg pain do you have? Mine feels like I’ve ran a marathon and if I don’t take pain meds, it feels like I’ve torn muscles in both legs... All the best

Re: Grade 3 Astrocytoma

Smiley2 — Wed, 15 Aug 2018 23:12:11 GMT

Hi Nath250,

yes I understand Drs would find no connection, mine did too, if you look on the internet under wood dust exposure, I’m nit sure but I feel something needs to trigger the cancers in us and we will never know.

there are so many cancers out there now and something is going wrong somewhere.

Have to keep on keeping on, I have cancer in my bone marrow, and the pain down the front of my legs something ines is so awful . I can well imagine what you are going through, it’s like I had years ago, skin splits if your familiar with them. It’s weird

The fatigue is so aweful too and I feel it in my legs, like the old saying goes on my last legs. Dragging myself around, but I keep upright most days..lol resting helps also a hot bath.

i do pet sitting and get a nice hot bath at times,so that’s a good thing. It’s weird as the dogs sniff at my legs heaps, I’m sure they can smell cancer.

Im due to see my cancer Dr soon and have just had the blood tests two weeks before I go to see how my cancer levels are. Dr said last time my levels are up to where I may need treatment soon, I take a product called Gumby Gumby check it out, it may be helping me but I don’t know yet will see at my next visit if the markers go down I will be very happy.

i got mine online , it’s easy to order and is said to help also if your on chemo etc, it doesn’t react or stop any other meds working you may be taking.

thanks for the reply.

karen smily2