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  <channel>
    <title>topic prostate cancer in I've just been diagnosed</title>
    <link>https://onlinecommunity.cancercouncil.com.au/t5/I-ve-just-been-diagnosed/prostate-cancer/m-p/15442#M261</link>
    <description>I have just been diagnosed with Stage T3b prostate cancer with a Gleason score of 7. I have been offered three types of treatment, surgery or two types of radiation treatment. I am very confused with what treatment to choose and am wondering if anybody has been in the same position.</description>
    <pubDate>Sun, 19 Jun 2016 20:46:32 GMT</pubDate>
    <dc:creator>ferrous</dc:creator>
    <dc:date>2016-06-19T20:46:32Z</dc:date>
    <item>
      <title>prostate cancer</title>
      <link>https://onlinecommunity.cancercouncil.com.au/t5/I-ve-just-been-diagnosed/prostate-cancer/m-p/15442#M261</link>
      <description>I have just been diagnosed with Stage T3b prostate cancer with a Gleason score of 7. I have been offered three types of treatment, surgery or two types of radiation treatment. I am very confused with what treatment to choose and am wondering if anybody has been in the same position.</description>
      <pubDate>Sun, 19 Jun 2016 20:46:32 GMT</pubDate>
      <guid>https://onlinecommunity.cancercouncil.com.au/t5/I-ve-just-been-diagnosed/prostate-cancer/m-p/15442#M261</guid>
      <dc:creator>ferrous</dc:creator>
      <dc:date>2016-06-19T20:46:32Z</dc:date>
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    <item>
      <title>Re: prostate cancer</title>
      <link>https://onlinecommunity.cancercouncil.com.au/t5/I-ve-just-been-diagnosed/prostate-cancer/m-p/15443#M262</link>
      <description>Damn prostate cancer I wish my husband had your results My husband was diagnosed February 2016 with T3a  Gleeson 9 he had surgery as he had no option. 
Everything seems so overwhelming. Just take all the information they give you and write down questions.
We are not sure what his next stage is as he is currently going through scans as to determine what is the next treatment option so much to take in. 
What age are you? 
Which hospital ?</description>
      <pubDate>Fri, 24 Jun 2016 22:48:27 GMT</pubDate>
      <guid>https://onlinecommunity.cancercouncil.com.au/t5/I-ve-just-been-diagnosed/prostate-cancer/m-p/15443#M262</guid>
      <dc:creator>Rural_farmer</dc:creator>
      <dc:date>2016-06-24T22:48:27Z</dc:date>
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    <item>
      <title>Re: prostate cancer</title>
      <link>https://onlinecommunity.cancercouncil.com.au/t5/I-ve-just-been-diagnosed/prostate-cancer/m-p/15444#M263</link>
      <description>Hi.Sorry to hear of your Husband's diagnosis. I assume his is being referred to as Localised as mine is. I am about to have a few scans which I assume will give some indication of potential spread from the Prostate.
I am 66 and am seeing a Urological Surgeon. He has given me three options of treatment, surgery or two types of radiation. I feel like I am driving around a roundabout that has three exits and can't decide which one to take. Obviously the Surgeon would favour surgery but if I choose that path would need to have crossed off a lot of concerns before making that decision.
You are correct by saying it is very overwhelming and there are a lot of questions to ask. I am involving my wife in every step including decision making.
I have a friend who was diagnosed six years ago at age 64 with a Gleason score of 8.5 and underwent radiation and hormone therapy and now his cancer has been halted. I have spoken at length with him over the last few days about his experience. He considers himself to be leading a normal lifestyle and has a very positive attitude.
My real name is Michael and I would be more than happy for us to maintain contact and "compare notes"</description>
      <pubDate>Fri, 24 Jun 2016 23:24:44 GMT</pubDate>
      <guid>https://onlinecommunity.cancercouncil.com.au/t5/I-ve-just-been-diagnosed/prostate-cancer/m-p/15444#M263</guid>
      <dc:creator>ferrous</dc:creator>
      <dc:date>2016-06-24T23:24:44Z</dc:date>
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    <item>
      <title>Re: prostate cancer</title>
      <link>https://onlinecommunity.cancercouncil.com.au/t5/I-ve-just-been-diagnosed/prostate-cancer/m-p/15445#M264</link>
      <description>Hi Michael my husband is 51 and his went outside of prostate bed so he had a positive margin from surgery. His  PSA went down to .49 after 6 weeks then went up to .59 then .7 He has been referred to a radiation oncologist at the  Olivia  Newton John Cancer Centre to undergo PET Scans &amp;amp; MRI next week to determine if it is still in the prostate bed area then we will know what will be the next course of treatment.
It is so important for you and your wife to process this together it is life changing so you need to be there for each other but ultimately I leave the decision to my husband.
Surgery is a lot to take in and as you would know they scare the life out of you but thankfully he had a great surgeon and things went well.
When do you need to make a decision by?
Susan</description>
      <pubDate>Sat, 25 Jun 2016 00:02:33 GMT</pubDate>
      <guid>https://onlinecommunity.cancercouncil.com.au/t5/I-ve-just-been-diagnosed/prostate-cancer/m-p/15445#M264</guid>
      <dc:creator>Rural_farmer</dc:creator>
      <dc:date>2016-06-25T00:02:33Z</dc:date>
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    <item>
      <title>Re: prostate cancer</title>
      <link>https://onlinecommunity.cancercouncil.com.au/t5/I-ve-just-been-diagnosed/prostate-cancer/m-p/15446#M265</link>
      <description>Hello Susan. I misread your first message and didn't realize he had the surgery. What method of surgery did he have and what post operative symptoms did he experience. Assuming surgery will still be an option for me when I next see the Urologist on July 28 it will be the Da Vinci robot method.
I have done lots of reading and research and have reached a point where I need to stop because it is only confusing me as to which way to go.
My story really started 25 years ago when I first started seeing a Urologist and have done so annually since. I was always under the assumption if I got prostate cancer it would be an early detection but unfortunately hasn't been the case for me. As you would appreciate my first reaction was anger but soon realized to remain angry was just negative and wasted energy. My approach now is to try and maintain a positive attitude and have let all those around me know I am very willing to talk it and answer any questions. I even joke about some aspects of it which probably makes some people squirm a little but hope my approach to it all will brush off onto them.</description>
      <pubDate>Sat, 25 Jun 2016 01:17:57 GMT</pubDate>
      <guid>https://onlinecommunity.cancercouncil.com.au/t5/I-ve-just-been-diagnosed/prostate-cancer/m-p/15446#M265</guid>
      <dc:creator>ferrous</dc:creator>
      <dc:date>2016-06-25T01:17:57Z</dc:date>
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    <item>
      <title>Re: prostate cancer</title>
      <link>https://onlinecommunity.cancercouncil.com.au/t5/I-ve-just-been-diagnosed/prostate-cancer/m-p/15447#M266</link>
      <description>My husband had the davinci robotic surgery done in Melbourne in March this year. He had some minor incontince for about 6 weeks after now is completely dry. He had nerve sparing  on one side so with a bit of medication that department is ok it is a very mental drain for him for me I'm happy to have my husband.
I read a lot of information but always remain positive as negative thoughts only bring you undone and I need to stay strong for everyone around. 
My husband is a the point where he doesn't want to talk about it as it upsets him as there is still so much uncertainty about which treatment he will do until scans are back. 
Was there a reason that you started seeing s urologist 25 years ago?
My husband had no symptoms just went for a regular checkup</description>
      <pubDate>Sat, 25 Jun 2016 01:35:58 GMT</pubDate>
      <guid>https://onlinecommunity.cancercouncil.com.au/t5/I-ve-just-been-diagnosed/prostate-cancer/m-p/15447#M266</guid>
      <dc:creator>Rural_farmer</dc:creator>
      <dc:date>2016-06-25T01:35:58Z</dc:date>
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    <item>
      <title>Re: prostate cancer</title>
      <link>https://onlinecommunity.cancercouncil.com.au/t5/I-ve-just-been-diagnosed/prostate-cancer/m-p/15448#M267</link>
      <description>Hello Susan. I am so appreciative of having someone I can talk with, especially considering your Husband had the Da Vinci surgery and thank you being open with me regarding certain aspects.
I am sorry the surgery for him didn't remove all the cancer and hope his future treatment will be successful. Again I refer to my friend who had radiation therapy six years ago and is on hormone therapy and has been told his cancer has been halted.
My reason for first seeing a Urologist 25 years ago was for kidney stones but he also started the process of regular prostate checks. When I was referred to the Urological Surgeon my first question was why wasn't it detected earlier with a DRE. He said unfortunately not all tumours are palpable. My only symptom was a slowly rising PSA.
I am in Adelaide and the surgeon is only one of a few who use the Da Vinci method.</description>
      <pubDate>Sat, 25 Jun 2016 02:03:00 GMT</pubDate>
      <guid>https://onlinecommunity.cancercouncil.com.au/t5/I-ve-just-been-diagnosed/prostate-cancer/m-p/15448#M267</guid>
      <dc:creator>ferrous</dc:creator>
      <dc:date>2016-06-25T02:03:00Z</dc:date>
    </item>
    <item>
      <title>Re: prostate cancer</title>
      <link>https://onlinecommunity.cancercouncil.com.au/t5/I-ve-just-been-diagnosed/prostate-cancer/m-p/15449#M268</link>
      <description>Hi Michael the davinci method is less invasive my husband has six small incisions on his belly area and recovery was good. Hopefully you have success with the treatment option you choose.
It's hard to say which treatment is better as each case is so different like your friend who had only radiation &amp;amp; hormone treatment.
 we feel like we are being strung along by the Drs as they are very interested in my husbands case as they don't see many cases like his.
Thanks for sharing your story it is nice to talk to someone else.</description>
      <pubDate>Sat, 25 Jun 2016 10:23:51 GMT</pubDate>
      <guid>https://onlinecommunity.cancercouncil.com.au/t5/I-ve-just-been-diagnosed/prostate-cancer/m-p/15449#M268</guid>
      <dc:creator>Rural_farmer</dc:creator>
      <dc:date>2016-06-25T10:23:51Z</dc:date>
    </item>
    <item>
      <title>Re: prostate cancer</title>
      <link>https://onlinecommunity.cancercouncil.com.au/t5/I-ve-just-been-diagnosed/prostate-cancer/m-p/15450#M269</link>
      <description>Hi Michael the davinci method is less invasive my husband has six small incisions on his belly area and recovery was good. Hopefully you have success with the treatment option you choose.
It's hard to say which treatment is better as each case is so different like your friend who had only radiation &amp;amp; hormone treatment.
 we feel like we are being strung along by the Drs as they are very interested in my husbands case as they don't see many cases like his.
Thanks for sharing your story it is nice to talk to someone else.</description>
      <pubDate>Sat, 25 Jun 2016 10:24:17 GMT</pubDate>
      <guid>https://onlinecommunity.cancercouncil.com.au/t5/I-ve-just-been-diagnosed/prostate-cancer/m-p/15450#M269</guid>
      <dc:creator>Rural_farmer</dc:creator>
      <dc:date>2016-06-25T10:24:17Z</dc:date>
    </item>
    <item>
      <title>Re: prostate cancer</title>
      <link>https://onlinecommunity.cancercouncil.com.au/t5/I-ve-just-been-diagnosed/prostate-cancer/m-p/15451#M270</link>
      <description>T2C, Gleason 6.2 and rising PSA @ 5.1.  

No one noticed the first rise in PSA level 3 years earlier as the office girl filed the results away and no doctors bothered to read the blood test results until a new doctor arrived and she checked.

3 choices and decided on Radiation Therapy Last year, last check PSA was dropping very slowly to 2.5 and yet to check latest readings. 

I went through the whole process feeling like I had a cold compared to everyone else.  I stayed away from Hormone Treatment.  Surgery to me has too many side issues I was not prepared to take the risk so I put up with living in Perth for close to 3 months.

At present I am doing ok.

Well that's what I think anyway.

So what did you decide to do Ferrous?</description>
      <pubDate>Wed, 06 Jul 2016 08:27:45 GMT</pubDate>
      <guid>https://onlinecommunity.cancercouncil.com.au/t5/I-ve-just-been-diagnosed/prostate-cancer/m-p/15451#M270</guid>
      <dc:creator>lɛftəʊvə</dc:creator>
      <dc:date>2016-07-06T08:27:45Z</dc:date>
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    <item>
      <title>Re: prostate cancer</title>
      <link>https://onlinecommunity.cancercouncil.com.au/t5/I-ve-just-been-diagnosed/prostate-cancer/m-p/15452#M271</link>
      <description>Hi, I have decided to have surgery. My decision to go this path was based on removing the source of the cancer and, with pathology, know immediately if the cancer has started to metastasise.
My wife has been very much a part of my decision and we are very aware of the side effects.</description>
      <pubDate>Thu, 07 Jul 2016 19:56:21 GMT</pubDate>
      <guid>https://onlinecommunity.cancercouncil.com.au/t5/I-ve-just-been-diagnosed/prostate-cancer/m-p/15452#M271</guid>
      <dc:creator>ferrous</dc:creator>
      <dc:date>2016-07-07T19:56:21Z</dc:date>
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    <item>
      <title>Re: prostate cancer</title>
      <link>https://onlinecommunity.cancercouncil.com.au/t5/I-ve-just-been-diagnosed/prostate-cancer/m-p/15453#M272</link>
      <description>So when are you having surgery? Your decision process sounds just like what we thought take away the source then deal with what comes &amp;amp; fingers crossed for you that all goes well.
My husband got his results from his scans &amp;amp; all looks pretty good just a small bit in pelvic area which is what we were hoping for ( none is better) so just some radiation, couldn't believe how happy one could be to have radiation</description>
      <pubDate>Thu, 07 Jul 2016 20:32:42 GMT</pubDate>
      <guid>https://onlinecommunity.cancercouncil.com.au/t5/I-ve-just-been-diagnosed/prostate-cancer/m-p/15453#M272</guid>
      <dc:creator>Rural_farmer</dc:creator>
      <dc:date>2016-07-07T20:32:42Z</dc:date>
    </item>
    <item>
      <title>Re: prostate cancer</title>
      <link>https://onlinecommunity.cancercouncil.com.au/t5/I-ve-just-been-diagnosed/prostate-cancer/m-p/15454#M273</link>
      <description>Hello to you all.  
My husband had radical prostate surgery mid May and he is just about back on the road again, healthwise.
In between, there were complications during surgery, was back on the ward for 1/2 hour and rushed back to ICU for 4 days. He was in hospital for 10 days all up. Then 6 weeks with that catheter.  
Anyway, oh, how I wish I had seen people talking and chatting about the whole situation as we are in a rural area, hospitals and urology specialists are  in the city 120klms away.  
When we knew the diagnosis back in January, I looked up here on the site and couldn't find anyone chatting about prostate cancer. His dad passed away from it 19 years ago, so I sort of 'insisted' on him having yearly 'feely' and blood tests.  There were no symptoms whatever. His PSA level was 6 and Gleason score of 7.
I'm pleased to read that there has been lots of communication between partners too.
Thanks for taking the time to read this.
Joan.</description>
      <pubDate>Wed, 31 Aug 2016 07:52:37 GMT</pubDate>
      <guid>https://onlinecommunity.cancercouncil.com.au/t5/I-ve-just-been-diagnosed/prostate-cancer/m-p/15454#M273</guid>
      <dc:creator>Joan</dc:creator>
      <dc:date>2016-08-31T07:52:37Z</dc:date>
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    <item>
      <title>Re: prostate cancer</title>
      <link>https://onlinecommunity.cancercouncil.com.au/t5/I-ve-just-been-diagnosed/prostate-cancer/m-p/15455#M274</link>
      <description>Hello Rural Farmer.
Mind if I ask a question please. My hubby's incontinence is slowly getting better, though I would like to ask the medication you touched on for sex please.
John had nerve sparing surgery too, he can get release after a while, though no actual penile hardness when aroused.  It is something we both would like to get worked out eventually. John's 68.

thanks
Joan.</description>
      <pubDate>Wed, 31 Aug 2016 08:02:14 GMT</pubDate>
      <guid>https://onlinecommunity.cancercouncil.com.au/t5/I-ve-just-been-diagnosed/prostate-cancer/m-p/15455#M274</guid>
      <dc:creator>Joan</dc:creator>
      <dc:date>2016-08-31T08:02:14Z</dc:date>
    </item>
    <item>
      <title>Re: prostate cancer</title>
      <link>https://onlinecommunity.cancercouncil.com.au/t5/I-ve-just-been-diagnosed/prostate-cancer/m-p/15456#M275</link>
      <description>Hello Susan. Do you mind me asking how your husband is progressing. 
I have just recently undergone surgery, Monday last week, with the da Vinci method. Today I received my pathology result which unfortunately put my Gleason score at 9 so puts me at high risk of the cancer returning. At this stage my doctor wants to do a PSA test in two months which will determine what is next in the way of treatment. Even though I wouldn't suggest to anyone that it be put on their bucket list I must say the whole procedure, including having a catheter for a week, hasn't been traumatic as I was expecting. Also, after the catheter was removed I have almost no incontinence. It now becomes a waiting game but my Wife and I are not going to dwell on what might be. We have a caravan and intend using it until the wheels fall off! lol.</description>
      <pubDate>Wed, 31 Aug 2016 09:17:12 GMT</pubDate>
      <guid>https://onlinecommunity.cancercouncil.com.au/t5/I-ve-just-been-diagnosed/prostate-cancer/m-p/15456#M275</guid>
      <dc:creator>ferrous</dc:creator>
      <dc:date>2016-08-31T09:17:12Z</dc:date>
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    <item>
      <title>Re: prostate cancer</title>
      <link>https://onlinecommunity.cancercouncil.com.au/t5/I-ve-just-been-diagnosed/prostate-cancer/m-p/15457#M276</link>
      <description>Hello Susan. Do you mind me asking how your husband is progressing. 
I have just recently undergone surgery, Monday last week, with the da Vinci method. Today I received my pathology result which unfortunately put my Gleason score at 9 so puts me at high risk of the cancer returning. At this stage my doctor wants to do a PSA test in two months which will determine what is next in the way of treatment. Even though I wouldn't suggest to anyone that it be put on their bucket list I must say the whole procedure, including having a catheter for a week, hasn't been traumatic as I was expecting. Also, after the catheter was removed I have almost no incontinence. It now becomes a waiting game but my Wife and I are not going to dwell on what might be. We have a caravan and intend using it until the wheels fall off! lol.</description>
      <pubDate>Wed, 31 Aug 2016 09:17:17 GMT</pubDate>
      <guid>https://onlinecommunity.cancercouncil.com.au/t5/I-ve-just-been-diagnosed/prostate-cancer/m-p/15457#M276</guid>
      <dc:creator>ferrous</dc:creator>
      <dc:date>2016-08-31T09:17:17Z</dc:date>
    </item>
    <item>
      <title>Re: prostate cancer</title>
      <link>https://onlinecommunity.cancercouncil.com.au/t5/I-ve-just-been-diagnosed/prostate-cancer/m-p/15458#M277</link>
      <description>Hello Susan. Do you mind me asking how your husband is progressing. 
I have just recently undergone surgery, Monday last week, with the da Vinci method. Today I received my pathology result which unfortunately put my Gleason score at 9 so puts me at high risk of the cancer returning. At this stage my doctor wants to do a PSA test in two months which will determine what is next in the way of treatment. Even though I wouldn't suggest to anyone that it be put on their bucket list I must say the whole procedure, including having a catheter for a week, hasn't been traumatic as I was expecting. Also, after the catheter was removed I have almost no incontinence. It now becomes a waiting game but my Wife and I are not going to dwell on what might be. We have a caravan and intend using it until the wheels fall off! lol.</description>
      <pubDate>Wed, 31 Aug 2016 09:17:21 GMT</pubDate>
      <guid>https://onlinecommunity.cancercouncil.com.au/t5/I-ve-just-been-diagnosed/prostate-cancer/m-p/15458#M277</guid>
      <dc:creator>ferrous</dc:creator>
      <dc:date>2016-08-31T09:17:21Z</dc:date>
    </item>
    <item>
      <title>Re: prostate cancer</title>
      <link>https://onlinecommunity.cancercouncil.com.au/t5/I-ve-just-been-diagnosed/prostate-cancer/m-p/15459#M278</link>
      <description>Hi Michael glad your surgery went well sorry to hear your Gleason score is higher. My husband is doing well he has just finished radiation which was only 5 sessions not 35 it's a newer type of one as his was in a lymph node which was unable to be removed during his surgery. He also needs to do a PSA test in a few months to determine if radiation has worked,so it's a waiting game as well. We are also not dwelling on the Gleeson score as you just have to focus on the positive things. So next week we are taking a holiday. Hope you get better results at your first blood test</description>
      <pubDate>Wed, 31 Aug 2016 12:51:43 GMT</pubDate>
      <guid>https://onlinecommunity.cancercouncil.com.au/t5/I-ve-just-been-diagnosed/prostate-cancer/m-p/15459#M278</guid>
      <dc:creator>Rural_farmer</dc:creator>
      <dc:date>2016-08-31T12:51:43Z</dc:date>
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