https://onlinecommunity.cancercouncil.com.au/t5/If-cancer-returns/adenoid-cystic-carcinoma-of-the-breast/m-p/12536#M114 There are a few others here who have ACC but they do not post often . Having it in the breast is rare but I have met some online who do have the same as you . Tue, 07 Jan 2014 23:20:27 GMT SILLY 2014-01-07T23:20:27Z https://onlinecommunity.cancercouncil.com.au/t5/If-cancer-returns/adenoid-cystic-carcinoma-of-the-breast/m-p/12535#M113 hello, how nice to have discovered this site. I was diagnosed nearly 8 years ago, and had a mastectomy. Have found my health is now compromised particularly in my sinuses. often feel like I am going mad as I worry about my health. Nice to not feel so alone. Wed, 20 Nov 2013 21:54:54 GMT https://onlinecommunity.cancercouncil.com.au/t5/If-cancer-returns/adenoid-cystic-carcinoma-of-the-breast/m-p/12535#M113 kerr 2013-11-20T21:54:54Z https://onlinecommunity.cancercouncil.com.au/t5/If-cancer-returns/adenoid-cystic-carcinoma-of-the-breast/m-p/12536#M114 There are a few others here who have ACC but they do not post often . Having it in the breast is rare but I have met some online who do have the same as you . Tue, 07 Jan 2014 23:20:27 GMT https://onlinecommunity.cancercouncil.com.au/t5/If-cancer-returns/adenoid-cystic-carcinoma-of-the-breast/m-p/12536#M114 SILLY 2014-01-07T23:20:27Z https://onlinecommunity.cancercouncil.com.au/t5/If-cancer-returns/adenoid-cystic-carcinoma-of-the-breast/m-p/12537#M115 I would be very interested in catching up with anyone in Sydney who has had an adenoid cystic carcinoma. Also I would love to go to Brisbane to meet other acc survivors in March. Please contact me at kerrfil@optusnet.com.au. Thank you ...Kerr Wed, 08 Jan 2014 05:39:56 GMT https://onlinecommunity.cancercouncil.com.au/t5/If-cancer-returns/adenoid-cystic-carcinoma-of-the-breast/m-p/12537#M115 kerr 2014-01-08T05:39:56Z https://onlinecommunity.cancercouncil.com.au/t5/If-cancer-returns/adenoid-cystic-carcinoma-of-the-breast/m-p/12538#M116 I have lost your email address . Mon, 03 Feb 2014 08:18:28 GMT https://onlinecommunity.cancercouncil.com.au/t5/If-cancer-returns/adenoid-cystic-carcinoma-of-the-breast/m-p/12538#M116 SILLY 2014-02-03T08:18:28Z https://onlinecommunity.cancercouncil.com.au/t5/If-cancer-returns/adenoid-cystic-carcinoma-of-the-breast/m-p/12539#M117 Found your email address . Thu, 06 Feb 2014 15:13:10 GMT https://onlinecommunity.cancercouncil.com.au/t5/If-cancer-returns/adenoid-cystic-carcinoma-of-the-breast/m-p/12539#M117 SILLY 2014-02-06T15:13:10Z https://onlinecommunity.cancercouncil.com.au/t5/If-cancer-returns/adenoid-cystic-carcinoma-of-the-breast/m-p/26511#M141 <P>Hi Kerr I also have adenoid cystic carcinoma (breast) and have known I've had it or something not right for many years. Last year I was formally diagnosed after pushing to get noticed in the system just recently I have has a unilateral mastectomy and now I am looking at chemo or radiation to blast in case of remnants. My condition is triple negative so yes I need to get on to it. But it has been hard to find anyone else with this condition. However I'm based in Melbourne not Sydney <span class="lia-unicode-emoji" title=":disappointed_face:">😞</span></P><P>Fiona</P> Thu, 12 Oct 2017 08:01:22 GMT https://onlinecommunity.cancercouncil.com.au/t5/If-cancer-returns/adenoid-cystic-carcinoma-of-the-breast/m-p/26511#M141 Readallaboutit 2017-10-12T08:01:22Z https://onlinecommunity.cancercouncil.com.au/t5/If-cancer-returns/adenoid-cystic-carcinoma-of-the-breast/m-p/26512#M142 <P>Hi Silly I'd be keen to chat or catch up with you or the others you speak of with this condition that would be great.</P><P>My email is fifinotapoodle@yahoo.com</P><P>Fiona</P> Thu, 12 Oct 2017 08:03:29 GMT https://onlinecommunity.cancercouncil.com.au/t5/If-cancer-returns/adenoid-cystic-carcinoma-of-the-breast/m-p/26512#M142 Readallaboutit 2017-10-12T08:03:29Z https://onlinecommunity.cancercouncil.com.au/t5/If-cancer-returns/adenoid-cystic-carcinoma-of-the-breast/m-p/26699#M144 <P>Sorry for the late reply . I'll send you an email .&nbsp;</P><P>&nbsp;</P> Sun, 17 Dec 2017 13:06:02 GMT https://onlinecommunity.cancercouncil.com.au/t5/If-cancer-returns/adenoid-cystic-carcinoma-of-the-breast/m-p/26699#M144 SILLY 2017-12-17T13:06:02Z