https://onlinecommunity.cancercouncil.com.au/t5/Living-with-cancer/Ewings-Sarcoma/m-p/3193#M1663 Thanks Steve, i will definately try to get into contact with her! Thu, 07 Jan 2010 10:35:56 GMT Elle 2010-01-07T10:35:56Z https://onlinecommunity.cancercouncil.com.au/t5/Living-with-cancer/Ewings-Sarcoma/m-p/3190#M1660 Would love to chat with people with my RARE cancer. It's tough enough being young with cancer. Thu, 07 Jan 2010 00:40:38 GMT https://onlinecommunity.cancercouncil.com.au/t5/Living-with-cancer/Ewings-Sarcoma/m-p/3190#M1660 Elle 2010-01-07T00:40:38Z https://onlinecommunity.cancercouncil.com.au/t5/Living-with-cancer/Ewings-Sarcoma/m-p/3191#M1661 I have Ewings sarcoma in my sacrum, which is the back of my pelvic bone. Have started chemo and it has started shrinking!!! Thu, 07 Jan 2010 00:42:24 GMT https://onlinecommunity.cancercouncil.com.au/t5/Living-with-cancer/Ewings-Sarcoma/m-p/3191#M1661 Elle 2010-01-07T00:42:24Z https://onlinecommunity.cancercouncil.com.au/t5/Living-with-cancer/Ewings-Sarcoma/m-p/3192#M1662 I just worked out who I'd chatted to who had Ewings Sarcoma - Lora Lee (http://www.cancerconnections.com.au/users/loraleeb)... when she was 16 (she's now 38). She doesn't use this site much any more, but you could send her an email or PM through her profile (she's also on Twitter). She's a bit busy at the moment going through chemo again (for breast cancer) and publishing her second book, but she's a great person and I'm sure she'd love to hear from you. Her book is really good by the way. Its a bit hard to get in Australia, we found the easiest was is through amazon.uk. Cheers Steve Thu, 07 Jan 2010 09:58:41 GMT https://onlinecommunity.cancercouncil.com.au/t5/Living-with-cancer/Ewings-Sarcoma/m-p/3192#M1662 stevec 2010-01-07T09:58:41Z https://onlinecommunity.cancercouncil.com.au/t5/Living-with-cancer/Ewings-Sarcoma/m-p/3193#M1663 Thanks Steve, i will definately try to get into contact with her! Thu, 07 Jan 2010 10:35:56 GMT https://onlinecommunity.cancercouncil.com.au/t5/Living-with-cancer/Ewings-Sarcoma/m-p/3193#M1663 Elle 2010-01-07T10:35:56Z https://onlinecommunity.cancercouncil.com.au/t5/Living-with-cancer/Ewings-Sarcoma/m-p/3194#M1664 Thanks Steve, i will definately try to get into contact with her! Thu, 07 Jan 2010 10:36:05 GMT https://onlinecommunity.cancercouncil.com.au/t5/Living-with-cancer/Ewings-Sarcoma/m-p/3194#M1664 Elle 2010-01-07T10:36:05Z