topic New to the grouo in Living with cancer

New to the grouo

Roselee — Thu, 19 Apr 2018 09:45:21 GMT

Hi. After 5 years with continuous treatment, surgeries, chemo, I am now stage 4 terminal, and have just hit a milestone of 12 months of chemo having treatment every 2 week. Life is hard.

Re: New to the grouo

Budgie — Fri, 20 Apr 2018 02:47:09 GMT

Hi Roselee,

Welcome to the site, & yes it is!

But we plod along, taking each day as it comes.

Wow, treatment every fortnight for a year is alot for anyone to take. Keep your chin up, look for the positives in each day, & take care.

All the best

Budgie

Re: New to the grouo

CaptainAustrali — Mon, 07 May 2018 14:00:29 GMT

Hey There

Cancer is a shit-show, no doubt, and often the treatments (and side effects) are as bad as the disease itself.

Just wanted to mention the immunotherapy studies and clinical trials, where they are having successes in pushing back disease in cancer patients who were otherwise considered terminal / palliative.

If you weren't aware of this line of treatment, it's basically where conventional science is headed - toward supercharging your own autoimmune response to attack the mutation / cancer. The idea is also that cancer is largely "invisible" to the immune system, and that there are treatments that spray paint a big red "kill this" sign onto it.

I personally know someone who was Stage 4 terminal (given less than a year to live) and got on these trials, and he's still kicking along several years later.

Just mentioning in case it's something you (or anyone else reading this) might find value or hope in talking to your oncologist.