topic Re: The beast is back in Living with cancer

The beast is back

Felix34 — Tue, 12 Feb 2019 12:18:43 GMT

Hello all,

Over the last week I have shown some signs that something wasn’t right with my head and they were totally different to the signs before my first two removals of GBM tumours

I have just finished my 18th cycle of increased TMZ and then I started to get pressure headaches, dizziness, and more tiredness and nausea than what I would get on a chemo week.

This is how things went down today.

My wife rang my General Physician this morning and told her what was going on, they then got onto my neurosurgeon and discussed the situation and ordered an emergency MRI. I had the MRI done at 12pm and then saw my neurosurgeon an hour later with the results.

The bad news is a new tumour has developed in my temporal lobe (the first two were in the partial lobe). The good news is it can be removed and I am booked in to have it done on the 22nd of Feb unless I have any seizures before hand, if I do they will admit me earlier and keep me monitored until the surgery.

My neurosurgeon rang the radiotherapy oncologist who I had with the first radiotherapy to see if it was locally targeted. The answer was yes so it looks like I will go through radiotherapy/chemotherapy again.

It has now been 20 months since diagnosis and as long as it can be operated on I will keep fighting it.

take care and keep smiling 👊🏻

Colin

Re: The beast is back

Budgie — Tue, 12 Feb 2019 23:25:17 GMT

I'm glad things are happening in a timely fashion for you Colin, & I love your attitude. Best of luck with the surgery.

Budgie

Re: The beast is back

kj — Wed, 13 Feb 2019 05:49:17 GMT

Best wishes for Surgery.

Re: The beast is back

tonygad — Thu, 14 Feb 2019 07:32:18 GMT

Hey Felix34
Although I've been a vacillating long term atheist/agnostic and I do not know you personally I have sent earnest invocation to whoever or whatever higher power exists that you will fully recover and continue your life to the fullest and in the happiest of circumstances with your loved ones, friends and community.

Re: The beast is back

Katekat — Thu, 14 Feb 2019 22:15:58 GMT

Wishing you all the very best for your surgery @Felix34!!!

Our team here at Cancer Council are keeping you in our thoughts this week

Re: The beast is back

Felix34 — Fri, 15 Feb 2019 12:32:38 GMT

Thanks Budgie,

I have an awesome team of specialists so I’m in good hands.

Colin

Re: The beast is back

Felix34 — Fri, 15 Feb 2019 12:33:16 GMT

Thanks kj

Re: The beast is back

Felix34 — Fri, 15 Feb 2019 12:35:58 GMT

Thanks Tony,

I love your attitude and I have the same views as you.

take care

Colin

Re: The beast is back

Felix34 — Fri, 15 Feb 2019 12:37:40 GMT

Thanks Kate,

I will do a post after the op with how it went.

Colin

Re: The beast is back

tonygad — Fri, 15 Feb 2019 23:29:08 GMT

You're most welcome Colin.

I have to say I admire your positivity and truly hope everything turns out well for you and your loved ones.

I will be seeing my clinical psycholigist today in the hope if not expecttion she will help me lift my mood which I'm struggling with at the moment although doing all I can to do so.

Be well

Tony