topic Re: Myeloid lymphoid neoplasms with pdgfra in Living with cancer

Myeloid lymphoid neoplasms with pdgfra

Kaiwightman — Sun, 04 Apr 2021 08:38:45 GMT

Hi, anyone dealing with the same or similar condition? Myeloid lymphoid neoplasm with pdgfra rearrangement, eosinophilloa with pdgfra mutation ,CEL-NOS or HES, LYMPHOBLASTIC LYMPHOMA with pdgfra mutation?

Re: Myeloid lymphoid neoplasms with pdgfra

sch — Mon, 05 Apr 2021 08:03:19 GMT

Hi there,

How are you going?

Wow, what a mouthful. Is this a variant of leukemia?

Are you having any treatment at the moment?

I hope you are OK.

Looking forward to hearing back from you.

-s

Re: Myeloid lymphoid neoplasms with pdgfra

Kaiwightman — Mon, 05 Apr 2021 12:29:29 GMT

Hi, yes I believe it is a leukemia and I'm being treated with imatinib. it's some sort of blocking pill.

I had been doing well up until this last week and started to experience symptoms I had prior to treatment. Although my recent blood work is perfect and scans show massive improvement.

I guess I'm lost as to what is going on, hoping to find someone with a similar illness.

Thanks for your reply

Re: Myeloid lymphoid neoplasms with pdgfra

MyheroCoolSpy — Wed, 07 Apr 2021 10:42:18 GMT

I hope someone knowledgeable enough answers this. This is really interesting to know.