topic unexpected post-treatment results ... in Living with cancer

unexpected post-treatment results ...

Essiejay — Tue, 31 Mar 2026 21:43:03 GMT

Hi …

I’m Essie. I was diagnosed with stage 2B pancreatic cancer last year and had most of my pancreas removed followed by 6 months of Folfirinox chemotherapy. Now post-treatment my blood CA19 is over 500 (and with a clear ''no sign of disease'' CT scan) compared to a much lower CA19 when I still had the tumour, pre-surgery and pre-chemo. Has anyone else experienced this? Thank you.

Re: unexpected post-treatment results ...

Felicity_CCNSW — Tue, 31 Mar 2026 22:40:01 GMT

Hi @Essiejay

I am very sorry to hear about your diagnosis and what you have had to navigate through your treatment.

Thanks for joining us in the forum and posting. This is a very supportive space to share and ask for support from others.

I can imagine it is challenging to make sense of your recent results. Have you spoken about them to your medical team? Have they been supportive in you understanding this result?

Take care

Felicity

Re: unexpected post-treatment results ...

Essiejay — Wed, 01 Apr 2026 19:18:58 GMT

Thank you Felicity ... it is a case of being in limbo ... sit and wait for the next few months for another scan and see if 'anything shows' plus another CA19 bloods. They don't know why / what is going on at the moment. But I thought I'd see if anyone else had experienced similar.