https://onlinecommunity.cancercouncil.com.au/t5/Treatments-and-side-effects/Recovering-from-treatment/m-p/712#M346 Hello everyone, Just hoping that everyone is feeling really well.   Wed, 11 Mar 2009 01:15:37 GMT bev 2009-03-11T01:15:37Z https://onlinecommunity.cancercouncil.com.au/t5/Treatments-and-side-effects/Recovering-from-treatment/m-p/699#M333 I am recovering from surgery, radiotherapy and chemo for agressive form of cancer of the cervix and dealing with the side effects, emotional as well as physical. Is there anyone else out there going through the same? I know when I was newly diagnosed about 12 months ago I came to this site for information. It would have been great to have someone to talk to about what I had ahead of me so if there is anyone who I can help out with any questions please post. Or anyone recovering I would love to have a chat. Wed, 11 Mar 2009 01:02:37 GMT https://onlinecommunity.cancercouncil.com.au/t5/Treatments-and-side-effects/Recovering-from-treatment/m-p/699#M333 2009-03-11T01:02:37Z https://onlinecommunity.cancercouncil.com.au/t5/Treatments-and-side-effects/Recovering-from-treatment/m-p/700#M334 Welcome to the forums butterfly Thank you for making the first post and I'm glad to hear you're recovering well. Hopefully now that you've started the discussion some more people will be encouraged to pop their heads up and ask questions. Wed, 11 Mar 2009 01:03:37 GMT https://onlinecommunity.cancercouncil.com.au/t5/Treatments-and-side-effects/Recovering-from-treatment/m-p/700#M334 mikey 2009-03-11T01:03:37Z https://onlinecommunity.cancercouncil.com.au/t5/Treatments-and-side-effects/Recovering-from-treatment/m-p/701#M335 Hi and thanks Mikey, I know there are a lot of women out there like me & there aren't  many australian on line forums like this one so hopefully others will join in!! these are my first ever posts like this on the internet I have seen some others mostly american that I havent really felt comfortable with probably because theyre around the other side of the world and it is nice to know you are connecting with people a little closer to home. Wed, 11 Mar 2009 01:04:37 GMT https://onlinecommunity.cancercouncil.com.au/t5/Treatments-and-side-effects/Recovering-from-treatment/m-p/701#M335 2009-03-11T01:04:37Z https://onlinecommunity.cancercouncil.com.au/t5/Treatments-and-side-effects/Recovering-from-treatment/m-p/702#M336 Hi There, this is the first time ive seen this forum. If you read my profile you will have the details of my problem. I would love to hear from you if you can offer any advice to me. Also congratualtions, its fantastic to hear your on the road to recovery its very encouraging.   Wed, 11 Mar 2009 01:05:37 GMT https://onlinecommunity.cancercouncil.com.au/t5/Treatments-and-side-effects/Recovering-from-treatment/m-p/702#M336 Christine 2009-03-11T01:05:37Z https://onlinecommunity.cancercouncil.com.au/t5/Treatments-and-side-effects/Recovering-from-treatment/m-p/703#M337 Hi Christine, Im sorry to hear the news about your mum. I had a quick look at your profile and it looks like your mum is scheduled for surgery this week. Im not a doctor but I can give you some info about my situation that may help. The tumor I had was grade 3 which is aggressive, stage 1b1 it was nearly 4 cm, was growing through lymph channels but my lymphnodes were negative.  With surgery and treatments I am doing well and plan on celebrating my 5 year mark, in about 4 years time. I had radical hysterectomy with removal of lymphnodes, I think it was about 3 or 4 days after surgery when the pathology results came back. The recovery from the surgery was hard but trouble free, I was home about a week later. My chemo and radio started 6 weeks after the surgery. I remember when I was diagnosed I just could not believe it was happening so I understand that its a shock for you and your family. Just try to support your mum as best you can, she will be well taken care of. The waiting game is hard but just try not to think the worst the chances are high that they have caught it early and that she will be fine. What state is your mum in? I go through the RNS in sydney all of the doctors and nurses that I have come accross have been wonderful. Please feel free to send me a private message if I can help in any way and keep us updated. All the best, Wed, 11 Mar 2009 01:06:37 GMT https://onlinecommunity.cancercouncil.com.au/t5/Treatments-and-side-effects/Recovering-from-treatment/m-p/703#M337 2009-03-11T01:06:37Z https://onlinecommunity.cancercouncil.com.au/t5/Treatments-and-side-effects/Recovering-from-treatment/m-p/704#M338 Hi there, This is my first time on this forum and the first time I have tried to speak with others about Cervical Cancer. I am 36 years old and was diagnosed with Cervical Cancer last December. I had survery just before Christmas and my oncologist passed away two days after my surgery. I had a radical hysterectomy and lymph nodes were removed. The pathology came back negative for the spread of cancer in my lymph nodes. But, it was not suggested that I have any further treatment (ie radiotherapy or chemo). I now have another oncologist who I think is okay, but I'm a bit confused and stressed why it wasn't suggested to have further treatment. Best wishes, Wed, 11 Mar 2009 01:07:37 GMT https://onlinecommunity.cancercouncil.com.au/t5/Treatments-and-side-effects/Recovering-from-treatment/m-p/704#M338 Elizabeth 2009-03-11T01:07:37Z https://onlinecommunity.cancercouncil.com.au/t5/Treatments-and-side-effects/Recovering-from-treatment/m-p/705#M339 Hi Elizabeth, Sorry to hear your story but glad to see you on here. It sounds like there was a good chance that they could cure you with surgery only which is great. What hospital do you go through? Looking forward to chatting soon. All the best Wed, 11 Mar 2009 01:08:37 GMT https://onlinecommunity.cancercouncil.com.au/t5/Treatments-and-side-effects/Recovering-from-treatment/m-p/705#M339 2009-03-11T01:08:37Z https://onlinecommunity.cancercouncil.com.au/t5/Treatments-and-side-effects/Recovering-from-treatment/m-p/706#M340 Hello, I had uterine cancer with similar treatment to uou, modified radical hysterectomy and removal of lymph nodes. Also, had 28 days of pelvic radiation. I now have 4 tattoos!!!! I have been trying lately to find someone who has had the same treatment as me, just to see how it has affected them as well as any side effects. Would be good to share this with you if you want.     Wed, 11 Mar 2009 01:09:37 GMT https://onlinecommunity.cancercouncil.com.au/t5/Treatments-and-side-effects/Recovering-from-treatment/m-p/706#M340 bev 2009-03-11T01:09:37Z https://onlinecommunity.cancercouncil.com.au/t5/Treatments-and-side-effects/Recovering-from-treatment/m-p/707#M341 Hi Bev, Sorry for taking so long to reply to your post. Glad to hear you are recovering well from your treatments. I had similar treatments to you by the sounds of it. Radical hysterectomy + Pelvic node removal + Chemo + radiation + brachytherapy. I am recovering pretty well however I do have some side effects to my bowel from the radiation which is probably going to have to be sorted out soon. I have check ups every 3 months which is always a bit stressful, my next one is in 3 weeks. Hope to chat again soon. Butterfly Wed, 11 Mar 2009 01:10:37 GMT https://onlinecommunity.cancercouncil.com.au/t5/Treatments-and-side-effects/Recovering-from-treatment/m-p/707#M341 2009-03-11T01:10:37Z https://onlinecommunity.cancercouncil.com.au/t5/Treatments-and-side-effects/Recovering-from-treatment/m-p/708#M342 Hello Butterfly, Thank you, it is nice to know that you are not alone. I also had trouble with my bowel. I had a colonscopy and gastroscopy last December and have been told every 12 months from then I will have a colonscopy and every 2nd year also a gastroscopy. My dad and grandfather both had bowel cancer, so I was really scared when I was going to have the colonscopy. They did remove 5 polyps, thank goodness they weren't cancerous. I saw my specialist on Monday, he is very pleased as he said that my cancer was very big and that I am recovering well. I only had 28 pelvic radiation treatments. Yes, I see my gyno oncologist every 6 months and the same for the oncologist on the off 6 months. I see my oncologist in August then the gyno in November. I haven't asked them yet, I know we don't get the all clear until 5 years have passed, but do we continue seeing the specialists every 3 months till then? Do you have to use a vaginal dilator? If so, how do you like using it? Great to have a response to my messages. Chat soon, thanks again, Bev  Wed, 11 Mar 2009 01:11:37 GMT https://onlinecommunity.cancercouncil.com.au/t5/Treatments-and-side-effects/Recovering-from-treatment/m-p/708#M342 bev 2009-03-11T01:11:37Z https://onlinecommunity.cancercouncil.com.au/t5/Treatments-and-side-effects/Recovering-from-treatment/m-p/709#M343 Hi Bev, I continue to see my specialists up until the 5 year mark so a few years to go yet. Even then I think I will have check ups with them for the rest of my life. I know that the side effects from the radiation have to be monitored as well as the possibilty of the cancer coming back. My specialist & his team are really great. I have no doubts that I owe my life to them & Im extremely thankful. Take care Butterfly Wed, 11 Mar 2009 01:12:37 GMT https://onlinecommunity.cancercouncil.com.au/t5/Treatments-and-side-effects/Recovering-from-treatment/m-p/709#M343 2009-03-11T01:12:37Z https://onlinecommunity.cancercouncil.com.au/t5/Treatments-and-side-effects/Recovering-from-treatment/m-p/710#M344 Thanks Butterfly, I don't mind going to the see the specialists actually as I know that by seeing them regularly then anything that has happened since the last visit, would hopefully be picked up. It is good to know that you are not alone, but gee I wish I could find someone that has had the same cancer & treatment as me.     Wed, 11 Mar 2009 01:13:37 GMT https://onlinecommunity.cancercouncil.com.au/t5/Treatments-and-side-effects/Recovering-from-treatment/m-p/710#M344 bev 2009-03-11T01:13:37Z https://onlinecommunity.cancercouncil.com.au/t5/Treatments-and-side-effects/Recovering-from-treatment/m-p/711#M345 Hi elizabeth, I was diagnosed with uterine cancer & had a full hysto in june this year, my lymph nodes were clear. no further  treatment was needed for me either but i got to thinking I should've...what if there's anything left floating around. it's confusing sometimes. my oncologist gynocologist is dr felix chan at liverpool hospital, what a wonderful dr he is!!! I guess I have to trust in him & from what i've been told he is one of the best Quote: Hi there, This is my first time on this forum and the first time I have tried to speak with others about Cervical Cancer. I am 36 years old and was diagnosed with Cervical Cancer last December. I had survery just before Christmas and my oncologist passed away two days after my surgery. I had a radical hysterectomy and lymph nodes were removed. The pathology came back negative for the spread of cancer in my lymph nodes. But, it was not suggested that I have any further treatment (ie radiotherapy or chemo). I now have another oncologist who I think is okay, but I'm a bit confused and stressed why it wasn't suggested to have further treatment. Best wishes,   -------- Wed, 11 Mar 2009 01:14:37 GMT https://onlinecommunity.cancercouncil.com.au/t5/Treatments-and-side-effects/Recovering-from-treatment/m-p/711#M345 kerfuddled 2009-03-11T01:14:37Z https://onlinecommunity.cancercouncil.com.au/t5/Treatments-and-side-effects/Recovering-from-treatment/m-p/712#M346 Hello everyone, Just hoping that everyone is feeling really well.   Wed, 11 Mar 2009 01:15:37 GMT https://onlinecommunity.cancercouncil.com.au/t5/Treatments-and-side-effects/Recovering-from-treatment/m-p/712#M346 bev 2009-03-11T01:15:37Z https://onlinecommunity.cancercouncil.com.au/t5/Treatments-and-side-effects/Recovering-from-treatment/m-p/713#M347 has anyone had trouble with legs swelling after lymph node removal in pelvis? Wed, 11 Mar 2009 01:16:00 GMT https://onlinecommunity.cancercouncil.com.au/t5/Treatments-and-side-effects/Recovering-from-treatment/m-p/713#M347 louisa 2009-03-11T01:16:00Z https://onlinecommunity.cancercouncil.com.au/t5/Treatments-and-side-effects/Recovering-from-treatment/m-p/714#M348 is there anyone out there? Wed, 11 Mar 2009 01:17:00 GMT https://onlinecommunity.cancercouncil.com.au/t5/Treatments-and-side-effects/Recovering-from-treatment/m-p/714#M348 louisa 2009-03-11T01:17:00Z https://onlinecommunity.cancercouncil.com.au/t5/Treatments-and-side-effects/Recovering-from-treatment/m-p/715#M349 hi there... i just now got through a second emergency operation and had gotten thru chemo for abt 6 mos.   I have an agressive form /grade of cancer and had a hysterectomy and was hopeful that no cells escaped but was not that lucky ... now im facing a round of radiation along with lose dose chemo for 6 wks once i recover from the emergency surgery where they removed another cancerous tumor.   been thru the mill and back and trying to figure out how to get in gear to fight this round.  Have a 4 yr old and its really hard emotionally right now.  Faced with thoughts of not being around long term and could use someone to talk to....   Im finding this cancer stuff can become a whole new way of life.. I thought i was done and could go back to normal..   there will never be normal gain so i have to figure out what this new thing is going to be.  I'm grateful that I'm here for now... and will not become an angry mess.  Even though i have those moments.   keep up the forum .. people need people to talk to...    Diane Wed, 11 Mar 2009 01:18:37 GMT https://onlinecommunity.cancercouncil.com.au/t5/Treatments-and-side-effects/Recovering-from-treatment/m-p/715#M349 kiwibud 2009-03-11T01:18:37Z https://onlinecommunity.cancercouncil.com.au/t5/Treatments-and-side-effects/Recovering-from-treatment/m-p/716#M350 Hi Louisa, I have a few troubles with swelling in one of my legs I have good days and some not so good. It probably didnt help that I fell down the stairs 2 weeks into my chemo & radiation and did some damage to my leg. It just plays up a bit  now. But I have become used to it. Im happy to be alive and I guess its a side effect but it could be worse. I have replied to your other message  keep your chin up!! When do you start your treatments? Are you in Sydney? Hope to chat soon. Wed, 11 Mar 2009 01:19:37 GMT https://onlinecommunity.cancercouncil.com.au/t5/Treatments-and-side-effects/Recovering-from-treatment/m-p/716#M350 2009-03-11T01:19:37Z https://onlinecommunity.cancercouncil.com.au/t5/Treatments-and-side-effects/Recovering-from-treatment/m-p/717#M351 Hi Diane, Sounds like you've had a tough time. Sorry to hear your story. I know how hard it can be to stay strong. I also have children, one is 13, the other is 3. That feeling of not being around for them is not a nice one. But try and stay positive ( sorry I know it can be annoying when people say that)  You got through your last treatments you can get through this as well. Just accept that you will have bad days but try and think; the treatments will end & be effective and then you can move on with your life. I am happy to chat if you need some support. Butterfly Wed, 11 Mar 2009 01:20:37 GMT https://onlinecommunity.cancercouncil.com.au/t5/Treatments-and-side-effects/Recovering-from-treatment/m-p/717#M351 2009-03-11T01:20:37Z https://onlinecommunity.cancercouncil.com.au/t5/Treatments-and-side-effects/Recovering-from-treatment/m-p/718#M352 Butterfly, thats so much for your response.  what you said is so true...   people that are not sick telling you to be positive when i think I'm already pretty positive gets on my nerves.  (i have my moments of being angry) BUT it is the truth, most of the time I try to be in a good mood and I did work the entire time thru my treatment.   Now though, I'm realizing I'm no where near done like I had planned.  Now this is going to be a whole way of life, and I will make adjustments. This type of forum is really good for me beacause it allows me to have other people going thru what I am and know stuff that helps.  I want to be that person for someone else.   Hopefully, we can chat soon. I havent figured out this forum yet....  I know on HysterSisters they had all kinds of cool stuff and the people there were great.   I'm cookin a big old turkey soon, so gobble gobble have a great day!   Hauling out the christmas cd's to cook and thank GOD that i can have a mimosa!     Hope you're feeling good today too!   diane Wed, 11 Mar 2009 01:21:37 GMT https://onlinecommunity.cancercouncil.com.au/t5/Treatments-and-side-effects/Recovering-from-treatment/m-p/718#M352 kiwibud 2009-03-11T01:21:37Z