topic Re: adenoid carcinoma in Treatments and side effects

adenoid carcinoma

Hildi — Wed, 15 May 2019 09:51:52 GMT

I was diagnosed with adenoid carcinoma in January 2019. I had flu like symptoms for sometime last year, but a little lump came up near my nose/eye. I thought it was just an infection & so did my GP & prescribed antibiotics. But lump increased & GP realised there was an underlying problem. January 2019, she referred me to specialist Dr Daniel McCormick, who immediately arranged that I have my operation at St Vincent's Hospital, Melbourne, attended by a team of specialists. Operation was successful. Medication unfortunately had horrible side effects. But that is not my issue, I am back in Hobart. I commenced my first radiation treatment yesterday. I would like to get feedback from other people about their experiences. I was given a list of all the things that can go wrong & that plays over & over in my mind.

Re: adenoid carcinoma

Katekat — Fri, 24 May 2019 01:52:47 GMT

Hello @Hildi and welcome,

How are you doing this morning?

Sorry to hear you have been experiencing side effects from the medication, can I ask what medication you're on? That might help with others sharing their experiences.

Also, what sort of side effects are you experiencing? How are you finding the radiation treatment?

-Kate

Cancer Council Online Community Manager

Re: adenoid carcinoma

Hildi — Fri, 24 May 2019 09:20:43 GMT

Not on any medication since leaving hospital, thank goodness. I was on endone. Currently undergoing radiation. Can anyone relate their experiences for radiation on the face. I have been told to expect the side effects in 3/4th weeks. I am going into my 3rd next week

Re: adenoid carcinoma

SILLY — Fri, 25 Oct 2019 21:34:46 GMT

Sorry I was so long in replying to your post . I haven't been on this site as much as I used to be . How are you now ?

Re: adenoid carcinoma

SILLY — Thu, 30 Jan 2020 02:12:46 GMT

Heidi

Do you mean your diagnosis was Adenocarcinoma or Adenoid Cystic Carcinoma ?

Re: adenoid carcinoma

SILLY — Thu, 30 Jan 2020 02:14:24 GMT

Sorry , I should've called you Hildi not Heidi .