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    <title>topic Head and Neck - After Treatment &amp;amp; Lymphedema in Treatments and side effects</title>
    <link>https://onlinecommunity.cancercouncil.com.au/t5/Treatments-and-side-effects/Head-and-Neck-After-Treatment-amp-Lymphedema/m-p/38147#M4267</link>
    <description>&lt;P&gt;Hi... thought I'd pop in.&amp;nbsp; My 7 weeks radiation and chemo treatment ended on 13 May.&amp;nbsp; It is today 24 July and I have to wait until mid August for my follow up petscan so I know if I'm jumping for joy or not &lt;span class="lia-unicode-emoji" title=":slightly_smiling_face:"&gt;🙂&lt;/span&gt;&amp;nbsp;&amp;nbsp;&lt;/P&gt;&lt;P&gt;&amp;nbsp;&lt;/P&gt;&lt;P&gt;I'm one of the 50% unlucky ones hwo have ended up with lymphedema &lt;span class="lia-unicode-emoji" title=":disappointed_face:"&gt;😞&lt;/span&gt;&amp;nbsp; And now have to massage my face and neck morning and night every day for the rest of my life...&lt;/P&gt;&lt;P&gt;&amp;nbsp;&lt;/P&gt;&lt;P&gt;Just when I think its getting better, my throat becomes so painful I can't eat and have to swallow some "pink lady" to numb it.&amp;nbsp; I'm still on Fentynal (spelling?) pain patches...&amp;nbsp;&lt;/P&gt;&lt;P&gt;&amp;nbsp;&lt;/P&gt;&lt;P&gt;I've gone from size 14-16 down to size 8-10.&amp;nbsp; Wasn't deliberate &lt;span class="lia-unicode-emoji" title=":slightly_smiling_face:"&gt;🙂&lt;/span&gt;&amp;nbsp; I always wanted to be the size I was in my 20's... hadn't planned on this kind of diet though...&lt;/P&gt;&lt;P&gt;&amp;nbsp;&lt;/P&gt;&lt;P&gt;I've taken up ballroom/latin dancing for exercise because I'm not a gym person.&amp;nbsp; Sometimes I'm fine and other times a simple turn makes me off balance and dizzy.&amp;nbsp; But I believe the exercise is good for us and for our brain &lt;span class="lia-unicode-emoji" title=":slightly_smiling_face:"&gt;🙂&lt;/span&gt;&lt;/P&gt;&lt;P&gt;&amp;nbsp;&lt;/P&gt;&lt;P&gt;I would love to afford more Reiki (and if you have cancer and haven't tried Reiki you don't know what you are missing!&amp;nbsp; You MUST find a good Reiki master!&amp;nbsp; But I now pay out a lot of money for my lymphedema treatment so can't afford both...&amp;nbsp; one Powerball!&lt;/P&gt;&lt;P&gt;&amp;nbsp;&lt;/P&gt;&lt;P&gt;so if anyone else is a couple of months past the end of their treatment and wondering what to expect... this is my experience.&amp;nbsp; Plus I have a runny nose a lot and still have that annoying dry cough every now and then...&amp;nbsp; &amp;nbsp;the runny nose might be my lymphedema though...&amp;nbsp;&lt;/P&gt;&lt;P&gt;&amp;nbsp;&lt;/P&gt;&lt;P&gt;Ah cancer... the gift that keeps on giving... in so many ways &lt;span class="lia-unicode-emoji" title=":slightly_smiling_face:"&gt;🙂&lt;/span&gt;&lt;/P&gt;&lt;P&gt;&amp;nbsp;&lt;/P&gt;&lt;P&gt;Hang in there everyone... don't give up the things you love to do and if you didn't have anything before, find something now.&amp;nbsp; Life is too short to leave your bucket list for a "one day" scenario!&lt;/P&gt;&lt;P&gt;&amp;nbsp;&lt;/P&gt;&lt;P&gt;xxx&lt;/P&gt;&lt;P&gt;Donna&lt;/P&gt;&lt;P&gt;&amp;nbsp;&lt;/P&gt;&lt;P&gt;&amp;nbsp;&lt;/P&gt;</description>
    <pubDate>Sat, 24 Jul 2021 06:14:48 GMT</pubDate>
    <dc:creator>Dee58</dc:creator>
    <dc:date>2021-07-24T06:14:48Z</dc:date>
    <item>
      <title>Head and Neck - After Treatment &amp; Lymphedema</title>
      <link>https://onlinecommunity.cancercouncil.com.au/t5/Treatments-and-side-effects/Head-and-Neck-After-Treatment-amp-Lymphedema/m-p/38147#M4267</link>
      <description>&lt;P&gt;Hi... thought I'd pop in.&amp;nbsp; My 7 weeks radiation and chemo treatment ended on 13 May.&amp;nbsp; It is today 24 July and I have to wait until mid August for my follow up petscan so I know if I'm jumping for joy or not &lt;span class="lia-unicode-emoji" title=":slightly_smiling_face:"&gt;🙂&lt;/span&gt;&amp;nbsp;&amp;nbsp;&lt;/P&gt;&lt;P&gt;&amp;nbsp;&lt;/P&gt;&lt;P&gt;I'm one of the 50% unlucky ones hwo have ended up with lymphedema &lt;span class="lia-unicode-emoji" title=":disappointed_face:"&gt;😞&lt;/span&gt;&amp;nbsp; And now have to massage my face and neck morning and night every day for the rest of my life...&lt;/P&gt;&lt;P&gt;&amp;nbsp;&lt;/P&gt;&lt;P&gt;Just when I think its getting better, my throat becomes so painful I can't eat and have to swallow some "pink lady" to numb it.&amp;nbsp; I'm still on Fentynal (spelling?) pain patches...&amp;nbsp;&lt;/P&gt;&lt;P&gt;&amp;nbsp;&lt;/P&gt;&lt;P&gt;I've gone from size 14-16 down to size 8-10.&amp;nbsp; Wasn't deliberate &lt;span class="lia-unicode-emoji" title=":slightly_smiling_face:"&gt;🙂&lt;/span&gt;&amp;nbsp; I always wanted to be the size I was in my 20's... hadn't planned on this kind of diet though...&lt;/P&gt;&lt;P&gt;&amp;nbsp;&lt;/P&gt;&lt;P&gt;I've taken up ballroom/latin dancing for exercise because I'm not a gym person.&amp;nbsp; Sometimes I'm fine and other times a simple turn makes me off balance and dizzy.&amp;nbsp; But I believe the exercise is good for us and for our brain &lt;span class="lia-unicode-emoji" title=":slightly_smiling_face:"&gt;🙂&lt;/span&gt;&lt;/P&gt;&lt;P&gt;&amp;nbsp;&lt;/P&gt;&lt;P&gt;I would love to afford more Reiki (and if you have cancer and haven't tried Reiki you don't know what you are missing!&amp;nbsp; You MUST find a good Reiki master!&amp;nbsp; But I now pay out a lot of money for my lymphedema treatment so can't afford both...&amp;nbsp; one Powerball!&lt;/P&gt;&lt;P&gt;&amp;nbsp;&lt;/P&gt;&lt;P&gt;so if anyone else is a couple of months past the end of their treatment and wondering what to expect... this is my experience.&amp;nbsp; Plus I have a runny nose a lot and still have that annoying dry cough every now and then...&amp;nbsp; &amp;nbsp;the runny nose might be my lymphedema though...&amp;nbsp;&lt;/P&gt;&lt;P&gt;&amp;nbsp;&lt;/P&gt;&lt;P&gt;Ah cancer... the gift that keeps on giving... in so many ways &lt;span class="lia-unicode-emoji" title=":slightly_smiling_face:"&gt;🙂&lt;/span&gt;&lt;/P&gt;&lt;P&gt;&amp;nbsp;&lt;/P&gt;&lt;P&gt;Hang in there everyone... don't give up the things you love to do and if you didn't have anything before, find something now.&amp;nbsp; Life is too short to leave your bucket list for a "one day" scenario!&lt;/P&gt;&lt;P&gt;&amp;nbsp;&lt;/P&gt;&lt;P&gt;xxx&lt;/P&gt;&lt;P&gt;Donna&lt;/P&gt;&lt;P&gt;&amp;nbsp;&lt;/P&gt;&lt;P&gt;&amp;nbsp;&lt;/P&gt;</description>
      <pubDate>Sat, 24 Jul 2021 06:14:48 GMT</pubDate>
      <guid>https://onlinecommunity.cancercouncil.com.au/t5/Treatments-and-side-effects/Head-and-Neck-After-Treatment-amp-Lymphedema/m-p/38147#M4267</guid>
      <dc:creator>Dee58</dc:creator>
      <dc:date>2021-07-24T06:14:48Z</dc:date>
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