Life after Leukaemia - Hello is that the universe? Yeah hey, this wasn't my plan...


Life after Leukaemia - Hello is that the universe? Yeah hey, this wasn't my plan...

Hey everyone!


This is my first post on the forum! Which is great. Now i've had Leukaemia for the first time AND posted on the forum for the first time, heaps of firsts. Kicking goals.


I'm not really sure how this works so I'll just lay out the facts. My name is Alex and I'm an, wrong forum. My name is Alex and I'm a survivor of AML - Acute Myeloid Leukaemia. I was diagnosed in December 2008, one week before Christmas (Thanks Santa) and spent 7 months in Nepean Hospital in Western Sydney. 244 days to be exact. It was, unquestionably, the most difficult time of my life. I suppose that's to be expected. What I didn't expect was that once I was sent home, my life would be just as hard.


I'm 28 now and the time spent with chemo coursing through my veins recedes into the distance, but it still affects me emotionally and mentally as much as ever.


Truth be told I often felt, and continue to feel, that I was designated to die back then. But some holy power, be it God or the universe, marked my file incorrectly and I've been left wandering earth ever since. I have felt such deep emptiness at my survival, such guilt and shame that other lives have been lost when all I did was lie in bed and hope for the best. I am so grateful for life and I want to make the most of it, but too often I feel empty and sad, like a ghost. For lack of a better expression - I'm dying to live.


I guess I'll leave it here for now and leave the floor open to feedback if anyone feels like chatting.


How have you sought meaning after your cancer fight was over?

Have you felt empty and how did you combat those feelings?

Any words of wisdom for this bloke on how to go forward in life?


Thanks for your time and keep up the fight all of you, we all kick ass Smiley Happy


Yours in time,


Frequent Contributor

Re: Life after Leukaemia - Hello is that the universe? Yeah hey, this wasn't my plan...

Thank you for sharing your experiences with us @Alexander!


How are you doing this afternoon?


I wonder if you might find our survivorship webinars of interest? They cover a range of different topics and are accessible here. Just choose to filter by survivorship, or have a look at them all.



0 Kudos
Post new topic
Talk to a health professional
Cancer Council support and information 13 11 20Mon - Fri 9am - 5pm or
Cancer Information and Support

Online resources and support

Access information about support services, online resources and a range of other materials.

Caring for someone with cancer?

Find out what resources and support services are available to assist you.