My situation is quite complex but I’m hoping someone out there might help with some questions. I am an Australian living in the UK. I was diagnosed with stage 3C ovarian cancer in Oct 2016. After surgery and six months of chemo (carboplatin/taxol), I was cancer free for 12 months but relapsed in April this year. I’ve just finished six months of carboplatin/caelyx. In January, I will be starting on a parp-inhibitor (niraparib) to try to prolong a relapse. I want to use the disease-free time I have to move my family back to Sydney, to be closer to friends and family.
So my questions are as follows:
1. Is niraparib (or similar) available in Australia and is it available through the PBS? Or will private health insurers cover it? I have sent an email to the fund we will be covered by, but haven’t heard back yet.
2. Does anyone with ovarian cancer have recommendations for oncologists in Sydney, preferably North side? Does the new hospital at Frenchs Forest have cancer services?
3. Has anyone here with a late stage ovarian cancer diagnosis successfully accessed their superannuation on compassionate grounds?
Thanks in advance,
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