Blogs

Blogs
A blog is a shared online journal where people can post diary entries about their personal experiences. You can post a new blog entry using the buttons on the right side of this page or view the list of latest blog entries below. You can also filter these using the blog labels to find those in similar situations to you.
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I am caring for my mother who has had surgery for a large tumor on her tongue, needless to say her eating is limited to soft runny foods and her talking is very hard to understand. Her weight has dropped sufficiently and her energy levels are very low.

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After my 10 treatments of radiation and adjusting to my tablets of lyrics oxycontin tamoxifan and a heap of other drugs I was pretty ga ga. I had so many people telling me what was best for me what I should eat what I shouldn't eat what I should do and what I shouldn't be doing.

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I was diagnosed with fourth stage metastisised breast cancer in 2013. I was given months to a year to live. The cancer was found in four places. My right breast 8 lymph nodes under my arm a patch on the main artery in the back of my head and has eaten out my first vertebrae. They removed it from under my arm and my breast.

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Saw Dipti (hematologist) today 3 weeks since last visit when she arranged urgent bloods - she then went away for 3 weeks. Upshot platelets are low as are lymphocytes. Dipti had ordered a PET scan at the end of July when I finished chemo and even though she had told Canberra Hospital 3 weeks ago that it was urgent as it was a possible recurrence I have still not heard from Canberra Hospital. 

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Not sure I am happy with the latest result at 2.1 but it is still dropping as the April test was 2.3. I'll check today's blood test results before Christmas and then probably not bother again until Sept/Oct 2017.

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Plan is chemotherapy once a week - started last Wednesday - I'm amazed that footdtuff already tastes metallic & my mouth sore thank goodness for paw paw ointment - it helps a great deal ! Have had 4 zaps of radiotherapy only 31 to go !!!

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