https://onlinecommunity.cancercouncil.com.au/t5/Blogs/Somedays-our-life-feels-normal/ba-p/21931 Sometimes I just wonder where life will lead us and how long the journey will take. My husband is approaching the 2 year anniversary of his GBM diagnosis - its been a bumpy road but we have also had normality and in some ways I feel we are lucky that this has been the case. He still works , yet can't drive, we go out and socialise and accommodate our life to his limited mobility, we spend time together and time apart, we argue - all normal ! He is about to commence his 19th dose of Temodal with one more to follow - then the oncologists suggests we stop as his body needs the rest. We will have an MRI then to see what is happening - the last few have been stable , tumour still there but growth unchanged ............. but you just know it is lurking there, it feels as though it is just waiting to pounce and catch you off guard. Normality is our focus, and I think we are doing well. There are the bad days but there are also the good - we are off on holidays in 3 weeks and that is our focus, can't wait ! Sun, 11 Mar 2012 01:07:36 GMT Smiley 2012-03-11T01:07:36Z https://onlinecommunity.cancercouncil.com.au/t5/Blogs/Somedays-our-life-feels-normal/ba-p/21931 Sometimes I just wonder where life will lead us and how long the journey will take. My husband is approaching the 2 year anniversary of his GBM diagnosis - its been a bumpy road but we have also had normality and in some ways I feel we are lucky that this has been the case. He still works , yet can't drive, we go out and socialise and accommodate our life to his limited mobility, we spend time together and time apart, we argue - all normal ! He is about to commence his 19th dose of Temodal with one more to follow - then the oncologists suggests we stop as his body needs the rest. Sun, 11 Mar 2012 01:07:36 GMT https://onlinecommunity.cancercouncil.com.au/t5/Blogs/Somedays-our-life-feels-normal/ba-p/21931 Smiley 2012-03-11T01:07:36Z https://onlinecommunity.cancercouncil.com.au/t5/Blogs/Somedays-our-life-feels-normal/bc-p/21932#M6269 Good on you and hubby Smiley. Normality is the thing, The illness is there, but whats wrong with not letting it take over your entire lives. Enjoy the time together, its priceless. Have a great holiday wombat4 \ Sun, 11 Mar 2012 03:22:40 GMT https://onlinecommunity.cancercouncil.com.au/t5/Blogs/Somedays-our-life-feels-normal/bc-p/21932#M6269 wombat4 2012-03-11T03:22:40Z https://onlinecommunity.cancercouncil.com.au/t5/Blogs/Somedays-our-life-feels-normal/bc-p/21933#M6270 You both seem to be doing the best things. Enjoy your holiday .You both deserve it. Sun, 11 Mar 2012 06:14:58 GMT https://onlinecommunity.cancercouncil.com.au/t5/Blogs/Somedays-our-life-feels-normal/bc-p/21933#M6270 SILLY 2012-03-11T06:14:58Z https://onlinecommunity.cancercouncil.com.au/t5/Blogs/Somedays-our-life-feels-normal/bc-p/21934#M6271 Hi Smiley, Hope you all had a good holiday, our family all went for a week to the beach, just what we needed. What can understand your hubbys chemo must of worked. Keep thinking life is normal Regards rarsie Sat, 05 May 2012 06:01:16 GMT https://onlinecommunity.cancercouncil.com.au/t5/Blogs/Somedays-our-life-feels-normal/bc-p/21934#M6271 rarsie 2012-05-05T06:01:16Z https://onlinecommunity.cancercouncil.com.au/t5/Blogs/Somedays-our-life-feels-normal/bc-p/21935#M6272 This is a big regret for me, so well done on trying (and succeeding!) to live 'normally', as I know it is not an easy thing to do. I hope you enjoyed your holiday together. My husband lived with the GBM diagnosis for 18 months. From day 1 he was severely impaired (physically & mentally) so I felt a bit robbed of the chance to "make the most of life while we can". You are doing the absolute best thing for you and your family - loving and living, now go and enjoy!! Mon, 07 May 2012 13:28:14 GMT https://onlinecommunity.cancercouncil.com.au/t5/Blogs/Somedays-our-life-feels-normal/bc-p/21935#M6272 Hopeful 2012-05-07T13:28:14Z