Not sure where to  begin really.. I feel like my whole world had been turned on its head and left me tangling with so many questions and not really getting any sense of what is next.

I had a Hemi right colectomy performed almost immediately following the diagnosis. Followed by Chemotherapy , I am just about to start my 4th cycle this Monday.

My oncology team are brilliant but I still have so many questions and I don't really know how to get or even word my questions.

The physical side of things, although uncomfortable, is pretty manageable.. The general tiredness is something that I am struggling to come to terms with.. Emotionally I feel a bit of a wreck, with questions that I find hard to pose or say without getting emotional so I prefer not to ask.

 

  • When will I know whether the chemo is having an affect
  • Will the chemo extend my life
  • How do I manage not knowing how long I may have
  • Why do I seem to cry at the drop of a hat
  • What can I do to make the most out of the time I have whilst not knowing the time you have.
  • How to remain positive around my family and not show weakness
  • How can you explain how you you are feeling when you don't really know yourself.

I haven't reached out for any counselling as I thought I could manage things on my own but it is becoming increasingly obvious that maybe i should.

 

 

4 Comments
Feebs74
Occasional Contributor

Hi Steve61

Sounds like I find myself in a similar situation.  I was fit, active and symptom free (or so I thought) when I noticed a lump in my abdomen in Jan 2025, which turned out to be stage 4 bowel cancer, with ovarian and lymph node involvement.  I had surgery in Feb, and have just had my 4th round of Folfox chemo on Tuesday. 
I have all the same feelings and emotions which I am struggling to deal with without an actual prognosis.  I am booked for a PET scan after my 6th round of chemo, and will meet with my Oncologist in early June to find out how things look then.  I won’t lie, I am terrified, and it’s going to be a long 6 weeks that I don’t want to waste when I feel like my remaining time is limited.  I just TRY to enjoy the good days between treatments and be kind to myself on the other days. 
Get out and about in nature when you can. It’s good for the soul. 
Cancer Council was able to help me arrange to speak to a counsellor within days of reaching out, which was much quicker than through my oncology team.  I had a session yesterday, and although they didn’t necessarily have the answers I seek,  it was good to let it out to someone other than family and friends, who I do try to put on s brave face for (because it makes it less awkward and painful for them).

 

Happy to chat more if you would like.

Feebs74 

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Steve61
Occasional Visitor

Thanks for responding... I agree that getting out and about is good for the soul. I am out Kayaking with a friend tomorrow... the first time for several months... I had originally ordered a new Kayak but cancelled the order when I had my diagnosis. It was a mistake as I based my decision on the cost and actually not knowing what the prognosis is, I am still none the wiser but decided that I needed something positive in my life so bought another one which arrived last week.

 

One of the difficulties I am having is just talking about things in a practical way without sounding negative.... Everyone wants me to be positive which actually stifles some of the things I want to talk about so bottling up emotions. Feels like I'm walking an emotional tightrope.

 

 

Feebs74
Occasional Contributor

I hear you Steve 

While I understand the importance of having a positive outlook, try as I might, my practicality doesn’t allow me to blindly keep it up all of the time.

Sometimes I need to address the what if’s. 
This ride is both a tightrope and a roller coaster. 

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joseph_CCNSW
Cancer Council Team

Hi  Steve61. Thank you for posting here.   I can see you have already had some support from others in the forum sharing their experience.  You may also find it helpful to search Cancer Council NSW's  website or to call Cancer Council's 13 11 20 line for information about the range of services available to support you.   Kind regards ... Joseph_CCNSW

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