:) ... View more

Hi Marshie Happy birthday to Brian. I hope you both enjoyed his special day and the oysters slid down easily. I hold the Xylimelt brown side against the roof of my mouth when going to bed. It sticks there within half a minute or so. I then go to sleep without moving my tongue against it so it dissolves very slowly over many hours. Mouth movements (such as talking) make it dissolve faster. If it has gone when I wake too early to get up I then have a squirt of Biotene Mouth Spray or Moisturising Liquid (a bit thicker than the spray) to get me through till rising time. Good blessings for the best options for Brian. (((Hugs))) Pamela 🙂 ... View more

Hi Marshie I hope you find them as good as I do. Most things I've tried have been helpful for me, while being of no use to some other people. Just a case of finding what suits. Kind regards, Pamela :) ... View more

Hi Marshie Am glad you have found that additional support that is such an important part of our lives - living this 'new normal', be it for patients or their carers. Good blessings for both you and Brian (((hugs))) Pamela :) ... View more

I had full depth surgery to remove a SCC (mouth ulcer) inner left cheek near corner of my mouth plus the rest of the inner left cheek sliced to remove pre-cancerous leukoplakia and neck dissection. Then wrist graft folded to cover inner and outer cheek with forearm tendon to give pull at new mouth corner so I could smile. Mouth no longer closes at that area - left corner. Then thigh graft to cover wrist. 30 rads a few weeks later. Result - facial disfigurement, face/neck lymphodema, nerve damage to face/neck/wrist/hand/arm, slow healing thigh graft (now past 2 year mark, severe chronic pain and heavy meds that barely work. My surgeon has learnt from my wrist problem and now does grafts from the upper arm, not needing a thigh graft to cover. Apart from that, I would do it all again, rads included, if necessary. Anything less was not worth the risk. But each of us must make our own decisions based on knowledge and treatment available at the time. Regrets are not helpful. Best wishes to all, Pamela :) ... View more

Marshie, never apologise for rambling, raving, ranting, venting or any other name it's called. That is one of the reasons we are here. You can vent to people who know where you are coming from unlike many of family and friends, many of whom have no idea. Another great group you may like to check out is: Survivors of Head and Neck Cancer (https://www.facebook.com/groups/45891977828/) - a wonderfully helpful, accepting group of people. Kind regards, Pamela 🙂 ... View more

Life is a learning curve, Marshie. Glad to be of help. Warm regards, Pamela :) ... View more

OK, Marshie but I don't think it would be any safer getting a credit card and using that. One other option is to open another account especially for purchases and only ever have the amount of the purchase in it so nothing more can ever be taken. ... View more

Marshie If you open a PayPal account and use your ordinary bank account to pay from, it will be a very safe way to purchase items without the need for a credit card. ... View more

Hi Marshie I use Xylimelts and find them good for about six hours at night. I prefer them stuck to the roof of my mouth rather than teeth/gums although the instructions warn of choking in that position. I also use a number of Biotene products - all good - toothpaste, mouth rinse, mouth spray, mouth moisturising liquid and dry mouth gum, plus ACT dry mouth lozenges and TheraBreath lozenges. With the Biotene mouth rinse, I only use a very small amount to moisten my mouth so there is little to spit and waste. Some of these are not available in Australia (as far as I know) but a friend bought them for me to try when he visited USA recently. Hope you find something that suits Brian, Pamela 🙂 ... View more