Hello mg
Wow, what can I say! Your story is my story. Every time one of my doctors told me something new I would say 'why didn't you tell me this before?' I am the type of person who wants to know it all upfront. False expectations are a waste of time; very draining and frustrating. I would rather know the worst and if it's not that bad - great!
I also wish the professionals would get together and exchange notes. My wrist was unmoving in a splint for 6 weeks. When it was taken off I could hardly move it, had no grip and much pain. After a few months of telling the doc's I was finally referred to a hand clinic where the physio said I should have been sent to them immediately the splint was off to stop the graft adhering to the tendons. But now the physio tells me exercise will separate the graft from the tendons, which to be seems to be totally illogical as well as impossible, not to mention mind-bogglingly painful, not only at the time of exercising but with on-going severity afterwards.
I am thankful to be alive and don't regret the choice I made to have the treatment I have had, but I wish the follow-up had been different. I realise, too, while typing this that I have some anger about the situation that I have not been aware of, but now I can deal with it. When things need to be done and I am just too exhausted to even start, I tend to feel guilty at my 'laziness' - something else I need to deal with.
In the middle of all this, I am very happy with much of my life and relationships and with wonderful, exciting plans for our future.
I do appreciate your comments to me, mg. I have only been on this site a few days and am finding it very valuable.
And you are so right - One Day At A Time!
http://www.youtube.com/watch?v=IOsAEibcqJo
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