G'day there good folks It is about time I gave people an update on where I am currently in my journey. Earlier this year I was on a clinical trial that gave me three good months and then the experimental drug stopped working. Then the mass in the abdomen starting strangling the left ureter, the tube that drains from the kidney to the bladder. Very uncomfortable! So after quite a few trips to hospital I now have lots of plastic plumbing, all of which I am assured will be temporary. In September I started chemotherapy. Three cycles so far and I have been tolerating the chemo well. Hair and beard have gone and one of my friends unkindly suggested that I bore a striking resemblance to the death mask of Ned Kelly in the Old Melbourne Gaol. The old adage who needs enemies when you have friends comes to mind! The major side effect has been on fast. Everything tastes bland, red wine taste awful and good single malt also! I've gone back to a drink from forty years ago - campari and tonic, coupled with lots of spicy food. What is the game plan from now? Chemo for probably another four months, then when things settle down more surgery to get rid of the plastic plumbing. That is of course that the chemo works. So far the indications are that it is. Cheers Sailor I keep sailing on in this middle passage. I am sailing into the wind and the dark. But I am doing my best to keep my boat steady and my sails full. Arthur Ashe
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Regular Contributor
Sailor, you continue to astound and inspire. Keep proving them wrong!!
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Super Contributor
Sailor Mixed emotions in reading your post. Glad that the chemo is working but sad that you are having to have more treatment. You do amazingly well in managing to keep going and that is truely inspiring. The mental/emotional "stuff" is as difficult to deal with as the physical and yet it is that, that remains unseen. You always express yourself intelligently and with dignity and I thank you for sharing. Julie
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