Adenoid cystic carcinoma

[SILLY]

I still have not seen that anyone on this site has the same cancer as me.If there is someone there I'd love to hear .Using international sites I have come across 5 other Australians with it,one living out of the country.Still I appreciate the contact with all of you.

[MeiSGoh]

Dear SILLY 

This may come years too late. But I have just been diagnosed with ACC. Am reaching out to people in similar boat as myself. However I am based in Melbourne. Would love to chat more. 

Thanks 

Mei 

[Debbie1]

Hi silly. My name is Debbie I live in Australia I have ACC . I had my lung removed. 2013 I have had lots of radiation.  it just spreads it

He jumped into my muscles such as my shoulder another muscles. So I'm doing a little bit of alternative medicine which seems to be working for me.

[SILLY]

Sorry Debbie , I just saw your post now . My ACC was diagnosed in early 2010 but so far I've had no recurrence or metasteses . I have stopped seeing my doctors for check ups but can see them if and when it returns . It's most likely to go to the lungs , which of course is very different to your experience . Anything that helps you is good . 

[Debbie1]

 hi Sally my name is Debbie I would love to talk to you privately.  I have ACC.                 my email is

debmarindustries@gmail.com. I live in Melbourne .

[SILLY]

I sent you an email Debbie . 

[June1]

Hi Sally, my name is June. I have been diagnosed ACC this morning. I am in Melbourne, wondering if I could talk to you to get some confidence to fight it. 

[June1]

My email address is xy_chu@hotmail.com anyone would like to share with me your experience please contact me because I am devastated. 

[SILLY]

I'm sending you an email . I'll begin writing it now .