ACCOI is a page on Facebook . They have reliable information . Find me on Fb. and send me a friend request and I can see that you can get into the appropriate groups . I may have already added you to the Australian group if you were the person I added only minutes ago. I sent you a friend request , if that was you . My name is Sylvia Farry . ... View more

I am sorry you are feeling unwell , only to discover that you have Hashimoto's Disease . I was diagnosed with this about 10 years before I was diagnosed but never suffered many symptoms . My only symptom was unexplained weight loss which I was told was a temporary situation. The treatment is one tablet daily and blood tests to check that the dosage is correct . I think your gp would've told you this . I don't know if weight gain will be a problem for you . I gained weight when my thyroid went from being overactive to underactive but my diet had also changed and I was getting older too. Hashimoto's isn't something I've worried about once I began medication.  When were you diagnosed with ACC ?    ... View more

Paula , All the best for your MRI  . It must be difficult losing your senses of taste and smell . I hope they return to normal or close enough eventually .  ... View more

Sorry , I should've called you Hildi not Heidi .    ... View more

Heidi  Do you mean your diagnosis was Adenocarcinoma or Adenoid Cystic Carcinoma ?  ... View more

Sorry Archie , I'm not on here as often as I used to be . I'm almost at 10 years since my diagnosis , which was in February 2010. My cancer was in a different place to yours so I don't know what radiation will be like for you or what the side effects are , but do ask any questions of your doctor . Perhaps you and your wife could write a list of questions .    During radiation the hospital staff are very caring and helpful and the nurses can often answer your questions between doctor visits . They are there to offer advice every day .       For me radiation was not as bad as surgery but many people find the opposite . My biggest problem at the time of radiation was feeling depressed about it all and I tried to get counselling which was on offer but didn't get an appointment during that time . I did get counselling a couple of months after radiation ended and it was so , so good . I contacted the Cancer Council after having trouble finding a suitable place to go . I highly recommend them to anyone feeling down or depressed about their cancer .    I can understand how all that is happening for you is taking a toll on you and your wife . I was 59 at diagnosis and luckily I had a supportive husband . I wish you well throughout .  ... View more

I have no helpful advice but can say that some cancer diagnoses are able to be considered terminal . My young sister died within a few months of her diagnosis . She had a different rare cancer and at diagnosis they knew she wouldn't live long because of the spread , despite a second extensive surgery . I'm guessing this is nothing like your circumstances .  Sorry this isn't very helpful to you .    ... View more

Archie,  Let us know how you are going .        ... View more

Melissa , I can put you in touch with others , apart from Australians , who have been diagnosed with ACC  of the breast . No problem after you send me a friend request .    ... View more

Hello Melissa    I'm glad I found your post as I am not good at using this site since it changed . ACC of the breast affects about 12%  of those with ACC . I used to get the statistics from the Cancer Registry for our cancer but after a few years they started charging a lot of money for that so I stopped . I think ACC of the breast usually has a better outcome compared to ACC in other sites . Of course every person's experience is individual . I can think of at least one Australian in our Australian Facebook group whose cancer was in the breast but I think there are a couple more too. Please contact me on Facebook as I know of no other way and I'll put you in touch with these others . I live on the Gold Coast but many of our group also live in Brisbane ,  All the best for your next surgery . It sounds as though it will go well .  Sylvia Farry        ... View more