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Living with cancer

Gumbi Gumbi

Hi...has anyone heard of the Australian plant called Gumbi Gumbi...we have been told it is used as traditional medicine for Indigneous Australians. A friend has suggested it as a natural therapy for cancer....has anyone used this or know where to buy it. Thanks

By 27 replies 55,755 views

Dealing with the frustrating effects of lethargy - grade 2 Oligoastrocytoma

Thinking of the recent discussions held with other brain tumour sufferers, referring to coping with the ongoing and frustrating situation we all suffer in different forms. I thought I’d document my current feelings and thoughts after a short days work (5 hours). I...Read More

By 0 replies 127 views

Living with head and neck cancer - my video journal - Week 5

Hi all Still trucking along on my second course of chemo-radiation for head neck cancer, having just wrapped week 5 of 7. Latest vlog tracking my progress is up on YouTube at https://youtu.be/ZH1TeGQinmo Cheers Shane

By 0 replies 207 views

GBM Brain Tumors

Hi, Its been a while since i have been online. Let me re introduce myself. My name is Cathy I am 29 and 12 months ago i was diagnosed with a Glioblastoma Multiforme grade 4. Since than i have had 2 brain surgerys, 6 weeks of radiation and 6 months of chemo. I am v...Read More

By 73 replies 6,978 views

Surgery22/02/19

Hello all,My surgery today seems to have been a great success . My neurosurgeon was able to resect the whole tumour but there was a lot of edema around the tumour.i am writing this why lying in CCU ( critical care unit). I am bored lol The surgery was for a tumour...Read More

By 10 replies 1,784 views

Chemo survival kit

Hi there - I've just passed from week 4 to 5 of my current treatment round for head neck cancer (HNC), involving radiation and chemo. I've been compiling a weekly update vlog that you can watch by following this link - https://youtu.be/VYO3WED25c4 This week I...Read More

By 0 replies 248 views

The cost of cancer

Hi members - I've just posted my Week 3 update, heading into week four of my second lot of chemo radiation for head-neck cancer. In this vlog I've provided a break down of the $262k my treatment has cost so far, including my out-of-pocket expenses, the public syst...Read More

By 3 replies 327 views

What are the best three things in your life right now ?

Hey, we're not dead yet, are we ? With cancer hanging over your head, it's easy to forget that. You start mentally winding a shroud around yourself, trying to bite the concept of mortality into digestible portions, reach a place where you can make peace with it. ...Read More

By 2 replies 372 views

No orgasm after prostatectomy

Hi everyone. I'm 46 and had a radical prostatectomy just under 4 weeks ago. I'm still getting erections (not as strong as they were, but strong enough), and my libido has remained strong. Surgeon said we could have non-vigorous sexual activity from yesterday. We di...Read More

By 11 replies 718 views

Waldenstrom's Macroglobulinemia

Anyone out there have Waldenstrom's Macroglobulinemia?I was diagnosed Feb this year. Have finished 6 rounds of Rituximab and Bendamustine.Would love to connect with any other WM sufferer.

By 4 replies 355 views

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