I found this old thread today and if folks are still around, hoping to pick the discussion back up. Particularly curious if @wordboy is still monitoring these boards and if so, whether you found any improvement since you posted this thread. I hope that you have for your sake. I had my RP exactly 10 weeks ago at Johns Hopkins. Surgery went well, doc (Dr. Allaf who has performed several thousand) was very pleased. I had almost zero pee leakage issues after having the cath removed. No diapers, some dribbles at night for a few days, that was it. So I consider that a big win because I hate pee. I had complications a week later with an intestinal infection that caused things to swell back up badly to the point where I couldn't eat or drink and got badly dehydrated - ended up in the ER for two days but once I was on antibiotics things improved rapidly and for the past 5 weeks I've been near 100%. ED is a big issue and I am also unable to achieve orgasm which of course is frustrating. Just as @wordboy describes basically - things build up, here we go, Houston we have lift-off... and then big nothing. It's bizarre. It's actually not a huge deal to be honest but it would be nice to have one again. I'm working on the ED. Can't take Cialis/Viagra because of a heart condition unfortunately. But we're doing our daily exercises and having the most fun we can. Lots of toys for her fill some gaps, so to speak (buh-dump-bump). Oddly, the first time we gave it a go was 2 weeks after surgery when I was feeling up to it, and things went okay. Not full erect but I'd say maybe 60-70%. And then there was a nice orgasm. But then I had the intestinal-caused issue which sidelined me for a week, and after that - nothing has come close to that first experience. My nuts did hurt for the first 8 weeks or so and still don't feel 100% right. It hurts to pee sometimes a little - particularly right when I need to go. I had a UTI once and the symptoms are basically the same just not nearly as severe. I recall the frequency and pain of peeing when I had the UTI as something like 8/10 discomfort and pain - now this is more like 2 out of 10. But it's not zero which is what I was used to 99.999999% of my life other than the one UTI and now post-RP. I'm scheduled for a cystoscopy in 3 weeks if still no improvement in the urinary pressure/pain (again, no leaking problem which is good). But I don't think that the urinary symptoms are related to the ED/orgasm issues. Anyway, that's my story fwiw. Will keep this thread posted. I guess as with all of these types of things, if I stop posting at some point, it probably means things improved enough to being out-of-sight, out-of-mind.
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