Hi There all you good people,
It's about time that I gave people an update on where I am at present.
After three months of chemotherapy my blood markers were going up rather than down but my blood counts were taking a nosedive. A CT scan showed that the main mass on my left side hadn't changed in size but now I have a new mass this time on the right side. It explains that the lower leg lymphodema is now in both legs not just the left. So the decision was to take me off the cytotoxic chemotherapy and put me on one of these new targeted drugs that costs an average persons salary. Fortunately it is now on the PBS so it isn't costing me anything. I am extremely grateful that I live in Australia and that we have the PBS and not like some other countries where the rich can afford therapy but the average person can't.
I don't know whether it is working but after a week on it I am beginning to feel human again. Just shows how easy it is to overlook the side effects of the drugs we are on.
Still have all the plastic plumbing an that is a real negative. I would like to suggest that the CEO's of the companies that make such equipment and their chief designer wear it for a week, then maybe, they would realise that we are not all sitting in wheelchairs, but some of us are active and want to lead a normal life.
So sailor keeps on sailing.
For the truth is that I already know as much about my fate as I need to know. The day will come when I will die. So the only matter of consequence before me is what I will do with my allotted time. I can remain on shore, paralyzed with fear, or I can raise my sails and dip and soar in the breeze. Richard Bode First You Have to Row a Little Boat
Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.