I was diagnosed with Carcinoid Syndrome in February 2012. My symptoms then were severe flushing and severe itching. I have had Liver ablation-partially succesful,Liver biopsy and am on Lanreotide 120 mg every three weeks. Greenslopes Hospital in Brisbane have been very helpful. I now await possible GA Dotatate treatment at the Royal Brisbane Hospital Nuclear medicine dept.
Apart from flushing and itching I keep well. I am trying a sugar free and carbohydrate free diet at present hoping it may help.
Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.