I am keen to chat to anyone who cares for someone or has an oligodendroglioma. My husband has one in his right frontal lobe. He was diagnosed in January 2004 and also operated on at that time. They weren't able to remove all of it as they were concerned if they went to deep he would be paralysed down his left hand side. In 2007 a new tumour was found to be growing into the cavity of the old one. This tumour has been monitored by 6 monthly MRIs so we live from MRI to MRI. He is on anti seizure meds and also takes some very strong painkillers for the daily headaches he suffers from. Would love from others about their experiences with this very challenging journey.
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