Thank you for all the comments. Here's a bit more about me. I've got the sort of cancer that just doesn't go away. I've had it for eleven years now and I was fortunate in having good clinicians right from the beginning. Partially luck, but also a bit of hard work and some good contacts who gave very good advice. So in some ways I've had a dream run. My clinicians gave me very aggressive treatment which is why I'm still around. Statistically I shouldn't be - all that goes to prove is that statistics are about the average, not the individual. So when someone tells you you have so much time, then that's based on averages, not necessarily you. Initially I hopes that the treatment had been successful and that appeared to be the case for the first three year, then it came back! More aggressive treatment but this time it came back in two years. Since then it has been periods of mild chemotherapy, then waiting until the blood markers go up again, more treatment and so on - so I'm in my sixth recurrence just at present. The only problem is am I beginning to become resistant to the chemo? My blood markers are up slightly when six weeks ago they were undetectable. My oncologist claims to be unconcerned and has ordered more tests for three months time. So you carry on impatiently waiting for the next three months to get moving. Five years ago a specialist from another state 'phoned me as they had heard about the experimental treatment I had after the first recurrence. They wanted to know the stats on my cancer and when I told them gave the response "Your still lave six years later, that's my good news story for the week". Well I'm still here eleven years later and still pretty active. Just occasionally it gets to you, however. So twelve months ago I started doing a whole lot of things and ended up seeing a psychologist who made me realise that I was in fact putting my affairs in order, getting ready for when I will not be here. That was a bit frightening. Cheers top all of you and hang in there. Sailor
2 Comments
Contributor
Hi Sailor, Thanks for sharing your amazing journey and glad to have you being part of our community. I am sure you will be an inspiration for many others members. Best
0 Kudos
Not applicable
HI Sailor..you have gone through a lot of rough sea's some huge waves by the sound of it..may your sea's become a calm place . Live Love Laugh From Livey
0 Kudos
Post new blog
Talk to a health professional
Cancer Council support and information 13 11 20Mon - Fri 9am - 5pm
Cancer Information and Support

Online resources and support

Access information about support services, online resources and a range of other materials.

Caring for someone with cancer?

Find out what resources and support services are available to assist you.