My journey through the suspected and possible ride of breast cancer.
By CAROLYN CLARKE
On the 9th January 2009 I went to my family doctor because i started bleeding from both AND HAVING examine me when I walked in to his office covered in blood breasts and nipples to be precise
He sent me for an ultrasound because he found something but didn't tell me what it was
That while trying to deal with your mum who has a terminal illness and has to go into a nursing home and can't look after you.
That in itself is a rollercoaster enough to send me over the edge with panic it did landed me in the hospital. Panic anxiety disorder.
Tough choice when you don't understand a lot and you're intellectually disabled but I got myself booked in for the aspiration on the 23rd January 2009
After weeks of worrying and no one explaining to me that I could have breast cancer .
I knew people died from this and found a site called MD junction and a friend who is my age named Jessie Harris was kind enough to explain to me that
IBC inflammatory breast cancer doesn't show up on mammograms and ultra sounds
With little help from my doctor and not many specialists in the ACT where I live but having had the rash and the lumps under both arms
But why wont my doctor refer me to a specialist maybe he doesn't think I need one
But as im 34 and just because I have had a negative ultrasound doesn't rule it out
But if I am going to get sick quick I am going to need support I have a psychologist and a
But the stress of IBC and no treatment is really starting to cause more stress and worry
I get new symptoms everyday
Just finding out about treatments is tough and the emotional wreck I am is a nightmare well after 8 long months of finding out I am finally able to see a surgeon by the name of ian Davis- parker
I am hurting and I am sore and my breasts are really painful and my family on my fathers side
Will not support me .
I was hurt but just finding a psychologist who will listen and support me is tough
I have very little friends and very little family although when my doctors reports came back from the specialist my doctor didn’t like the sound of what he was getting
The fact that I started bleeding from both breasts and now I have hard lumps in my breasts I can feel them and they hurt like crazy
As well as the rash I get and discharge I get which is a brownie chocolate colour
Everything I have said to my dr now is a little easier because he believes me
I have ordered a my journey kit and that has helped im going to keep some recorded information in there
Treatments for someone who doesn’t have a clue is tough
The support the my health booklet has given me is good because I now have a way to communicate with my doctor I realise my friends are busy with their own lives but I certainly don’t want to infringe on them with this
Now I know that my few friends care but I have my cyber friends in America and Md junction who have been through what I am going through
The breast cancer council has been wonderful.
The fact that my mum and peter didn’t believe me when I said I was allergic to iron (fe) things are just going to get worse
Now that I have an appointment with the specialist my mind is still going 10zillion miles an hour and still is
But the main things that lead me to suspect breast cancer are
Still bleeding from both breasts
And the test results I have
and the surgeon mentioned photos and other things
Everyone keeps telling me that breast cancer doesn’t hurt
Yeah right And im too young for breast cancer
ive been told that thickening of the skin is yet another part of inflammatory breast cancer
I am in constant pain and I am sick and tired to fight this anymore
Inflammatory breast cancer information is enclosed
I now have bleeding nipples and skin thickening and shortness of breath and it hurts I want to have the lumps removed but am in constant pain and have new lumps felt aspirin doesn’t work I have had to upgrade to a anti inflammatory medication or breast cancer I want a lumpectomy done
It’s the only way to find out .
this is my story and its a tough one im running out of energy trying to find out (help)
I love to chrochet and cross stitch I am studying certificate 2 in business and I have an ultrasound to get done because my doctor found something that he didnt like
so im back to square 1
Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.