Hi, I have multiple myeloma, diagnosed in Oct 2005, chemo then stem cell transplant in Jan 2006. Remission until relapse in mid 2008. Firstly I have to say that my quality of life is very good and I am grateful that there is so much for me to share and enjoy. After taking Thalidomide for over a year, I found the side effects increasingly difficult to live with, so have been almost a month on Revlimid. So far - better in some, worse in others. Next week I see my Oncologist and find out if it's managing the MM well enough, so I am in that strange limbo that many of us know - in between blood test and results. Under the Thalidomide, my cancer levels were slowly rising so I have fingers crossed that the Revlimid is working super-well. cheers - Tjebi.
3 Comments
Frequent Contributor
Hi Tjebi You look and sound like a guy I know. Might be me? I was diagnosed with multiple myeloma in April 2007 and went through three or four different regimes of chemo (one with thalidomide) to no avail. But in December 07 I started on Velcade and it just wiped out the myeloma cells. I was due to have a transplant, but it was considered unnecessary so i have cells collected and in the Alfred if I need them sometime in the distant future. Hey, guess what. I just had to add 'myeloma' to the computer's dictionary. It didn't recognise the word. Either did I when I first heard it. I'll cross my fingers for you. Remember, you may still have Velcade up your oncologists sleeve. H
0 Kudos
Not applicable
Hi Harker, Thanks for your comments. That must have been scary to go through several regimes before finding one that worked for your cells. I'm glad that Velcade is working for you, I have heard of it and understand that there are other options I have before I would need to resort to another stem cell transplant. My myeloma cells responded quickly to chemo, but my Oncologist noted that though this was a good thing, it could signal that my MM would also bounce back quickly from treatment. This has proved to be true, and I sometimes characterise my disease as being "a bit frisky" compared to some examples where the cells are more "lazy". I find that having an understanding of my cells personality helps me have an active relationship with my MM, rather than a passive one where I wait to see how it is going to behave. I chuckled at your comment about educating your computers dictionary about Myeloma. I didn't even really know what bone marrow did before being tossed into the oncological world.
0 Kudos
Frequent Contributor
It was scary, now that I can think about it with a bit of perspective. At the time I think I was just hanging on, hanging on and hanging on. I made sure I kept turning up, that's about all. I possibly went into suspension for ten months (April 07 to Feb 08), kind of like a hibernation. It effected everything and everyone, but I had to protect myself. That's the way I remember it. So, I'm writing about it now. Going back over that time is very demanding, I get exhausted after I've uncovered something I want to write about. I'm probably experiencing the real emotions now, more so than then. Interesting. H
0 Kudos
Post new blog
Talk to a health professional
Cancer Council support and information 13 11 20Mon - Fri 9am - 5pm
Cancer Information and Support

Online resources and support

Access information about support services, online resources and a range of other materials.

Caring for someone with cancer?

Find out what resources and support services are available to assist you.