Side effects of lymphnode removal years later

Bobbi
New Member

Side effects of lymphnode removal years later

I had lymphnode removal and radiation many years ago. I have suffered pain ever since. I wear a bigger band bra for rib pain but ribs still in discomfort. Underarm pain is getting worse and I can feel the thickness at the scar is feeling very solid. Anyone else experience this and who to go to for advice or treatment. Doctor really has no answers.

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Kristenm
Contributor

Re: Side effects of lymphnode removal years later

Very common side effect, sorry to hear you have endured it for so long. You need to see a physiotherapist for some treatment and get taught some homework . Even better if it is a physio  expereinced in cancer rehab . 

Lymphoedema therapists can also help, and advice you . From  better bras, wide sides, compressive , inserts to help spread the fluid and soften the fibrotic tissue.

You need to be assessed for chest/trunk lymphodema and get proactive about self care , or it just gets worse.

Like wise mastectomy bra specialists are a big help . ( even if your node removal was for another cancer) 

Scar thickening, radiation fibrosis, lymphtaic fibrosis etc  also reponds well to cold laser and also scar therapy trianed massage .

Couple great ones in Sutherland Shire Sydney if your lucky enough to live here.

 

 

Heap great videos on stretches, rib pain , slef lymphatic massage, radiation fibrosis, shoulders, and much more on this you tube channel .

https://www.youtube.com/@TheBreastCancerPhysio/featured

 

Find a scar therapist https://restorescartherapy.com/

 

Find a lymphoedema therapist https://www.lymphoedema.org.au/accreditation-nlpr/find-a-practitioner/

 

Some bra names 

Compression bras and products for lymphoedema swelling, similar, but different to post surgical recon medical compression bras.

 

Haddenham Prairie wear Hugger bras -Prima, Vida  ( Aria not in in AU yet )    https://hadhealth.com/hugger-bras         www.lymphshop.com.au

Haddenham Comfiwave -cotton ribbed stretchy chest band for sleep  https://hadhealth.com/comfiwave

Anita Lymph O fit bra, Anita sew in pocket,         https://www.heavenlycurves.com.au/anita-lymp-o-fit-bra-nude.html

Amoena- Cura lymph/Lymph flow range, Linda/Leslie soft bra, Liane singlet top, silicone texture pad, breast shell

https://www.amoena.com/au/lymph-care/                    https://www.opchealth.com.au/bellisse-compression-bra    https://au.brightlifedirect.com/search?q=jovipad

Jobst- Bellisse pocketed compression bra, various shaped JoViPads -lateral pad, breast pad with tail, surgical vest, PitPaks

Juzo -soft compress breast pad or breast bandage  https://oaplshop.com.au/bandage 

Mobiderm bra https://mobiderm.com.au/products/mobiderm-intimate-bra  & pads 5mm or 15mm https://mobiderm.com.au/collections/mobiderm-bandage-system

Lymph pads various textures – Medi  https://www.mediaustralia.com.au/products/lymph-pads-leg/ Juzo, https://www.juzo.com/en/products/compression-garments/additional-products/replacement-products/juzo-... , Cosmac Healthcare Swell spots https://cosmac.com.au/Swell-Spots/

 

*Many of these things you may need a lymphoedema therapist to order for you as they are medical grade.

Anita and Amoena brands can be ordered from a mastectomy bra specialist.

 

I am still doing rib stretches every day 18 yrs later , i get on the floor with a foam roller , do various stretches and lymph moving movements learnt from physios, Encore, EPs, and lymphodema therapists. It really helps reduce pain and discomfort. Move the body, move the fluid, stretch out the stiffness. 

 

My lymphoedema FB page is Lymphoedema Lymphatics Stuff

and Sutherland Shire Breast Cancer Support Group 

Bridge2008
New Member

Re: Side effects of lymphnode removal years later

Great to find this info as I deal with what I believe to be lymphoedema onset 17 years after surgery and axillary clearance
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