I'm new here and am trying to find out if there is a section for those with IBC.
I feel that it is different from "ordinary" (no disrespect intended) breast cancer and comes with it's own set of problems.. eg if you're lucky - you'll start at Stage 111B.
Can anyone help me with this?
Welcome to the site. Sorry, I can't help with inflammatory breast cancer. But, there are lots of good people here with lots of different issues.
What treatment are you having?
The 1st time I had IBC,(2010) it was in the left breast. I had 4xTAC then 4XTCH. Was given a rest for a month, then Simple Mastectomy.
This time I am having FEC100 for 3 cycles - then full CAT scans to see if it's working. If it is, I will then begin weekly infusions of Taxotere and Herceptin for 12 treatments. A bit of rest (about a month) then they will remove my right breast. I will be having Radiation this time - I couldn't have it to my left breast, due to having received the maximum amount in 2006.
My Chemotherapist is treating this latest bout as a new primary - therefore aggressively.
Having it again, is disappointing, but you just have to go along for the ride. Thanks for responding, Kindest Regards
My first IBC diagnosis was in 2007. I had 4xAC followed by 4xTaxotare, then right mastectomy followed by 33 rads. Since then (June 2008, I have been considered NED...no evidence of disease).
So sorry to hear you have a second primary case of IBC. Anything I can do to help you, I'm happy to do. I'm now Vice President of the Inflammatory Breast Cancer Foundation (www.eraseibc.com) and have been a volunteer with them since 2009. Feel free to contact me.
Allicat...we're such vain creatures - my first thought when told of the news - was "Oh no!! I'm going to lose my hair again". Forget about losing my remaining breast...it was the hair!! Ridiculous, I know.
Thanks for your good wishes ... I just have to put one foot in front of the other and plow on with it.
That's fair. It is 15 months since I finished chemo and my hair is now nearly long enough to get into one ponytail. I am looking forward to that - it would be very annoying to have to start again.
There are bigger problems but sometimes you just have to deal with one thing at at time - like you said - one foot in front on the other.
Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.