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My Myeloma story actually started in early 2018. I visited my GP complaining of a sore back, and he requested various tests including an x-ray and blood tests. I remember receiving a phone call where he informed me that I had a blood condition known as MGUS and he explained it had a remote chance of transitioning to Myeloma. He advised me that there was no rush to immediately follow-up. In fact, I was due to depart on a long holiday and he assured me that there was no need to take any action until after my holidays. By the way, the back pain turned out to be a muscle problem.
I first visited the local Cancer Care Centre in mid-2018 and was told all about MGUS and was recommended to have 6 monthly blood tests. My paraprotein level was around 5 g/l. Over the next year I was checked 6 monthly and the paraprotein level was static around 5 g/l. The Haematologist then advised that 12 monthly tests would be adequate and that my GP would be fine to check the results.
My paraprotein level remained around 5 g/l for 6 years until a test in November 2023. I then recorded a reading of 15 g/l. My GP advised that I should check again in 6 months. I didn’t wait that long, and I had a test after 4 months.
In March 2024, my paraprotein level had risen to 37 g/l. Time to see the Haematologist again.
By the way, I was 63 years old at this time and I was a healthy and fit passionate Mountain Biker and Golfer.
Following a bone marrow biopsy, my treatment for Multiple Myeloma commenced on 23 April 2024, at which time my paraprotein had risen to 60 g/l.
Details of my treatment (so far) are:
My results to date have been good.
The progress of my paraprotein levels have been as follows:
In addition to my treatment, I need to mention the damage that the Myeloma has done to my spine. Initially a skeletal scan revealed one fractured vertebra. A second scan some months later revealed a total of 5 fractured vertebrae. This has resulted in difficulty for me to stand erect and I experience pain when walking.
Consequently, I commenced on high dosage pain relief (60 mg of opioid based Targin – 30 mg morning and night). After my Stem Cell Transplant, I was able to slowly taper off the pain killers and finally in January 2025, I no longer require any pain relief. I still experience pain when walking, but this was never alleviated by the Targin anyway. I am completely pain free when lying or sitting in a comfortable chair.
At present, my biggest issue is my damaged spine. Even though most Google searches indicate that Myeloma fractures never heal, I have also seen evidence that exercise can make a difference, especially weight bearing exercise, as this is known to maintain good bone health. To that end, I am doing the following in the hope that it will trigger my bone repair.
But my story is so much more than just the treatment and the results. Obviously, the mental and spiritual aspects of dealing with an illness like Myeloma is a major factor that each and every patient needs to handle.
The greatest support I have leaned upon is my Christian Faith. Please continue reading, even if you are not “into” this lifestyle.
There are two main aspects I wish to mention – firstly, being able to remain peaceful during this period of my life, and secondly, seeing God’s involvement in my treatment and results.
Regarding being able to remain peaceful - When I first learned of my MGUS, I had 6 years to consider how I would deal with life if the MGUS transitioned to Myeloma. I quickly concluded that I would simply accept that God is in control, and I would look to God for peace. I was adamant that if I did end up with a serious cancer, that I was determined to respond and deal with it in a way that would make my family proud of the way I handle it (Wife, 3 Daughters, 3 Son-in-laws, 6 Grandchildren). Also, I wanted my potential cancer journey to bring glory to God.
This has worked – and I can honestly say that I have not experienced any anxiety during this whole time, I have not suffered any depression, and I have not lost a single minute’s sleep. Please note, there have been days when I have been despondent and angry (due to the back pain). Philippians 4:7 “And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus”.
With regard to God’s involvement in my treatment – I am sure many will be sceptical of my claims. I believe that God has blessed my treatment and results so far, so all I will do is state the list of experiences that are meaningful to me, as this is a very personal thing. You would need to experience God’s involvement in your own life to be able to verify the reality of his involvement.
I am hopeful of complete recovery from Myeloma or an extended life where my Myeloma can be managed. I am also hopeful that my damaged spine will heal and that I can lead a more comfortable life (and maybe even play some Golf again).
If these hopes are not realised, I am confident that God’s peace will be with me and God will help me deal with whatever is ahead. We will all die one day – and at that point I will look forward to being pain free in God’s presence.
Hi Peter
Thank you for sharing your Myeloma- my first 10 months story. It sounds like you have worked hard and continue to work hard to achieve your goals of being pain and myeloma free. I can see from reading your post how important your faith has been to you throughout the time of your MGUS and Myeloma diagnosis and treatment. I hope you continue to make improvements in your health.
Maddi