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Hello, I'm Nicole and I'm new to this way of communicating. I was diagnosed with supraglottis swamis cell carcinoma in May and have gone through 7 weeks of chemo and radiation treatment. Also had dysphagia and octynophasia. .Chemotherapy once a week, radiation 5 days a week. I was healthy and active and had a great job full time cleaning a school. I seemed to fly through the treatment with hardly any side effects. Ok, my neck peeled, I lost my love of food and eating, I couldn't eat solids. But was optimistic.
More tests months later, now, after visiting my dentist, I was told I had osteoradione crosis (ORN). It's apparently a side effect of radiation, and 😞. They just told me at the last appointment I was clear of my throat cancer,... but now I have to deal with this new threat. I'm scared and alone. Noone else can see my suffering but me. On the outside I put up a good show, but I'm not handling this mentally. Just need to talk, vent, scream and shout maybe bawl my eyes out. But I seem to have gone numb, and can't seem to get motivated anymore . It just seems one thing after another. I'm beginning to think I should have just put up with the cancer. Then I see my friend with advanced throat cancer (untreatable now it's too advanced) and even though he can't talk much, he says keep fighting for yourself. I'm not sure what I'm going to do. I want to go back to work but I can't.im going insane
Hello Nicole1. Thank you for posting here. I can hear how deeply you are feeling the impact of how your life has been changed. The online forum can be a wonderful space to find support from others who connect with your experience and share their own stories. You may also find it helpful to search Cancer Council's website or to call our 13 11 20 team for information about the range of services available to support you. Kind regards ... Joseph_CCNSW
Thankyou Joseph
I wasn't expecting a response, and you did and it seemed to somehow validate me. Thankyou.
I have contacted my local cancer care centre After talking on the phone, we have arranged a meeting and a network of support 😊. Nicole