Pancreatic cancer digestion pain

[Mdhelin]

Hello, my name is Markus and I am trying to cope with the pain of stage 4 pancreatic cancer. I have had the nerve block done and that helped with the back pain. I take creon when I eat. I am on endone, oxy, pregabalin and nothing seems to help with the pain after I eat. I am mainly living on Sustagen as digesting that is uncomfortable but bearable. When I try to eat real food I am up all night trying to deal with the pain. I have found a hot shower really helps. Once I have opened my bowels the pain eases up but later ramps up again. I am at my wits end. I need to sleep and I need to eat. I have already lost 20+kg in a short amount of time. 

Was hoping someone had a natural substance (already taking medical cbd) remedy that I could try. The pain meds and creon are not really helping. 
Thank you 

[kj]

Hi Markus

Unfortunately I have no suggestions that may help with your pain,I hope you get a reply that can help you.

kj

[Susana_CCNSW]

Hello Mdhelin,

Thank you very much for reaching out, I hope other members can provide you with some information and  their experience managing digestion pain.

I would like to share some links that provide  information that I hope you can find uselful.

Managing pain in pancreatic cancer

https://www.cancercouncil.com.au/pancreatic-cancer/advanced-cancer/

Neuroendocrine tumour pain.

https://www.cancercouncil.com.au/wp-content/uploads/2021/03/Understanding-Neuroendocrine-Tumours-202...

Understanding cancer pain

https://www.cancercouncil.com.au/wp-content/uploads/2023/07/Understanding-Cancer-Pain-2021.pdf

Kind regards

Susana

Cancer Council

Online Community

Moderator

[kj]

Has it been mentioned about trying fentanyl pain patches or morphine..

Are palliative care involved,usually they can advise on various ways and meds.