Thyroid Cancer 1 Year on

[Sofia2]

Hi everyone, 

I just wanted to share my experience and see if anyone else can relate to this. I was diagnosed with Papillary Thyroid cancer with sub-type follicule. I had a thyroidectomy, central lymph node removal and a high dose of radioiodine. 

1 year on and my blood tests (Tumor markers)  have started to trend slowly up. I was told that it appears that I have not responded to the radioiodine. All scans are clear but my blood work is going up. 

Has anyone experienced this or know what could possibly be the next treatment method when radioiodine doesn’t work. 

I don’t want to have to wait until it appears in my lump nodes. 

[Cindi54]

Hi @Sofia2 ,

I don't know about this type of cancer, but I feel you should contact your cancer team, did you get assigned a special cancer nurse you could speak to?

You should ring your specialists secretary maybe and ask who could give you advise.( they're often very kind)

I'm so sorry, it must be quite scary for you, I know the feeling, you need to find someone who knows this type of cancer and the treatment.

Hope you find advise soon,

Wishing you luck,

Cindi xx

[Susana_CCNSW]

Hi Sofia2,

Thank you for reaching out and sharing your experience with our community.

I am sorry to hear that your radioiodine treatment did not work. It must be very difficult and stressing  for you not knowing what treatment path you should follow now.

As Cindy suggested below the best advice is to talk to your medical team and ask all those questions that you believe will give you a clear understanding of your particular case, and what are the treatment options.

For now I will share with you a link with some information about Thyroid Cancer.

There are several different types of thyroid cancer, the most common is papillary thyroid cancer, in this link you could find information about symptoms, diagnosis and treatments.

https://www.cancer.org.au/cancer-information/types-of-cancer/thyroid-cancer

Treatment options

https://www.canceraustralia.gov.au/cancer-types/thyroid-cancer/treatment

Best wishes

Susana

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