Hi, I've recently undergone 4 cycles of chemotherapy (etoposide and cisplatin), and am now done with the treatment. so far the tumor markers are good. Currently however after a week and half after my treatment I've been dealing with ear ringing and muddled hearing.
I was wondering if anyone has experienced something similar, and if the issue has gone away. Or if anyone has any knowledge about this. Does this get worse? or lead to complete deafness?
Hi Freelancer - Yes I ended up with tinnitus during my first round of Cisplatin chemotherapy, and eventually it dropped away to about 50% of an issue but never disappeared. I had three "mega" doses in that treatment round.
I am just wrapping up a second round of Cisplatin treatment, but given my previous loading I had seven weekly doses (but still to the same total amount). The tinnitus has returned to about the same as it was at and will hopefully subside again.
I find it most of a problem in public spaces with hard surfaces, where the white noise makes a conversation hard, one of our cars is worse than the other, and things like the kitchen range hood really get me buzzing.
I investigated some of the "cures" out there but haven't pursued any - some swear by acupuncture...
Thank you for sharing your experience.
Your description of the side effects sounds exactly what I am experiencing. Basically any noise that bounces and creates echoes in a confined space, or public spaces really disrupts my hearing.
I'm glad to hear that there may be some recovery from this. my biggest fear is/was that it will get worse.
I pray that your treatment is successful, stay strong.
Hi, not sure how you are going, but thought I would tell you about my experience. Had a small lump removed from my salivary gland, then 6weeks radiation. Deafness didn't happen until about 3 months later. The inner ear has been damaged. My options are to have a grommet inserted and have an ear that leaks, or wear a hearing aid. I have decided on a hearing aid which does help but is not good in shopping centre environments.
All the best.
I’m really sorry to hear you are suffering from tinnitus! While I don’t have any personal experience with ongoing tinnitus I do have some knowledge from my work.
Unfortunately Tinnitus can be triggered by a range of factors some of those are medication, stress and damage to the inner ear. If you are still on any other medications it might be worth checking their side effect to ensure tinnitus isn’t one. Also avoid exposure to loud sounds or even moderate sounds over a prolonged period.
Hopefully the tinnitus will just resolve on its own but if it does continue to bother you I would suggest seeing an audiologist as they may be able to help. Some people find that they are suited to hearing aids which can help mask the tinnitus. The audiologist will also be able to test your hearing to see how much the tinnitus is affecting your hearing levels, as you mentioned muddled hearing.
There are also products you can buy that play sounds to help mask the tinnitus which can be helpful at quieter times when it might be more noticeable like when you’re trying to fall asleep.
Even if you have the tinnitus for a prolong period of time it is possible that it will eventually resolve its self, so hopefully you will get some relief from it soon!
I don't think it is supposed to intensify, but it will never go away.
The more you think about it, the worse it gets, distraction is your best friend.
Listening to music, watching TV - it's gone .. it's drowned out along with other ambient sounds.
Alone in a dark room, thinking about it .. it can become like a ghastly constant buzz in the back of your brain. Maddening.
I think the key to managing it is to try and push it out of your mind, and when you notice it, distract yourself with other things.
Practical tip - sleeping with a fan on is helpful. (Or other white noise maker)
Be part of this supportive community