Hi Silly, It is great to be able to chat to other people with out having to be really careful how you describe your feelings or pain. I supose we will get there .... If you send me a private message I can send you my windows messenger or skype email then we could chat there. some days I wish I had a common cancer (if I had to have one at all) Having a rare one brings difficulties & challanges to both us & the medical profession. But still I am glad it is me & not my husband or son who have it. Gwen ... View more

How do you delete these comments when they double up? It is frustrating when this happens lol ... View more

Hi all I also use windows messenger. It is simular to skype. It is a great way to chat. ... View more

Hi Live life, It is a hard thing the waiting game. I am having my opp next wednesday. the 18t It is getting scary now. I had my laproscopy in Jan so my wait is 3 months. that is normal. I hope you sibling has a good result. I dont know what or how my sisters feel as we have just lost a sister. I dont think they want to think about me yet. I have just got back from camping. it was a good break away but I feel like I should have been doing something constructive to get ready. Tell your sibling to swim to strengthen the lungs, walk to tone muscle & also to do some exercises to sterngthen the back. All this helps with recovery :-) I feel that I have been taking small steps to complete tasks instead of looking at the huge amount of work I had to do. It was easier to think of what needed to be done by the end of the week rather than by surgery time. I am rambling now. oh well my time is nearly here. Bring my challange on ... Free bed, food, service & all the drugs required .... I have got out my puzzle board & started a puzzle so it will be waiting for me. Best of luck to you all xxoo ... View more

Hi Live life, It is a hard thing the waiting game. I am having my opp next wednesday. the 18t It is getting scary now. I had my laproscopy in Jan so my wait is 3 months. that is normal. I hope you sibling has a good result. I dont know what or how my sisters feel as we have just lost a sister. I dont think they want to think about me yet. I have just got back from camping. it was a good break away but I feel like I should have been doing something constructive to get ready. Tell your sibling to swim to strengthen the lungs, walk to tone muscle & also to do some exercises to sterngthen the back. All this helps with recovery :-) I feel that I have been taking small steps to complete tasks instead of looking at the huge amount of work I had to do. It was easier to think of what needed to be done by the end of the week rather than by surgery time. I am rambling now. oh well my time is nearly here. Bring my challange on ... Free bed, food, service & all the drugs required .... I have got out my puzzle board & started a puzzle so it will be waiting for me. Best of luck to you all xxoo ... View more

Thanks for that info PA. I may go & see some one like that if I get time. But first I will make sure I get all my customers work finished. That will keep me de stressed lol. I am looking forward to easter weekend away from the work. I will keep my head up & positive. Thanks xxoo ... View more

Thanks for that info PA. I may go & see some one like that if I get time. But first I will make sure I get all my customers work finished. That will keep me de stressed lol. I am looking forward to easter weekend away from the work. I will keep my head up & positive. Thanks xxoo ... View more

Hi PA Thank you for your email. Glad that your husband is kind of stablised a bit - well no workse anyway. I have had a few very hard weeks. I went back to NZ & had a lovely time with all of my sisters, sadly Diane passed away 4 days after I got back. Very dignified ending as she was self sificient up till then. I am still tring to come to terms with it all. My surgery is in 3 weeks time. I dont know if my sisters want to come over & help me for a week each as it may be too close to losing Diane - I do understand if they dont want to face my stuff as well. I have managed to speak to a nurse in Sydney who has had a peritonectomy as well. I am still possitive about my surgery - still toooooo busy with getting all of my work done & finished before surgery. I am trying (being the operative word) to walk each evening & I am swimming for an hour each monday evening, on a high protien diet and also taking multi vitimans & minirals - all to strenghten the muscle & organs. Easter weekend we will go away up to mount Barney for a break, hope that I have my work finished by then so I can sort the house out before the males take control lol. I am also sorting out a lot of paper work for my diploma subject that I am doing so that I can research while recovering .... eeek ... So I suppose the stress will start soon for me ... I am going to see if they will let me do the pre surgery prep in hospital & not do it at home & the other thing I have to do is talk to the stoma nurse incase I end up with one for 3 months or so. But otherwise I am just tring to keep busy busy busy ... freek out time can be later on 🙂 after surgery ... xxoo ... View more

Sounds like you are both in a happier head space for the time being. Enjoy your time together & treasure your time on the road. I believe that the outdoors has a great feel to it. My surgery is apparently in 5 weeks time. :-) ... View more

So sorry to hear of Andrew's passing. RIP ... View more