I read this in great hope that I can cope as well as you. I struggle to imagine telling my 4 year old that dad isn't going to be with us forever. Breaks my heart. Thank you for sharing ... View more

Oh Minx, I am so sorry for you. Take care of yourself ... View more

Hi 😞 sorry to hear about your husbands diagnosis. You are now onboard the most unfortunate rollercoaster of your life. My husband has had a BT for 19 months now, it has slowly grown & changed over this time from something they thought quite benign to now thinking its a GBM stage 4. You need to remember a few things- They never mean what they say (even though it breaks your heart to pieces) If he's on Dexamethasone, (or a similar steriod) for brain swelling, you will find he can/will start to get roid rage. If he gets like this, stay out of his way. If you can, try to get off this drug, it steals life away from them. You will have great times- and then all of a sudden, really shitty times (read my blog- you soon see a pattern of ups & downs) He will get upset over little things, because he's freaking out on the inside and because the brain tumour does funny things to the brain waves. A wise person on here once said- you have to remember, your losing him, but he loses all of you. So much do to- in what feels like such little time. Brain tumours are the nastiest cancer out there. No one really knows how to treat them, as each one is so different. It affects the control centre of the body- things like when to go to the toilet, what to feel during emotional times, etc. My husband has what he calls, flash mares. During the day, he whilst awake will see a horrifing nightmare & can't control it. It really disturbs him. (for example, he will see a car accident occur if we are driving along, & he sees it in disturbing detail) If you have any questions, please feel free to ask or PM me. Stay strong, find someone to talk to as you will need it. Mel ... View more

Sorry to hear that 😞 ... View more

Welcome 🙂 Yes, radiation is a nasty nasty treatment- especially for mouth cancers. I hope you find this site useful, and your journey with this swear word cancer! ... View more

Thanks Virginia! I've just seen your msg- it certainly is one big roller-coaster isn't it! xx I hope you are doing well. ... View more

We all have these thoughts!! We are women, and strong capable ones at that- but majority of us have had our partners right by our sides making decisions with us. It's scary to think that the very near future, we will be making them on our own. I truly hope he see's sense in what you are suggesting. I have just finished doing something similar, and we are all so much more at ease now that we have a more maintainable home- & I am not so scared of the future. Does he still have superannuation? Not sure because you mentioned farming- but does he have any insurance through his super? Life policies will pay out on diagnosis of a terminal illness. Maybe you could look into that to relieve some of the financial pressure? xx Great big hugs ... View more

It has just been a miracle! What an amazing week we have had, I feel like the world has been lifted off my shoulders. ... View more

So glad you have good times to share & acknowledge!!! That is the most important part of this journey isn't it... noticing when things are good! I pray that they stay good for you! (And that the job interview is successful) ... View more